You must login or register to view hidden content on this page.
Hi Everyone. Hope this finds all of you doing well. I just thought I would give you a little update about how my dad is doing with ALS. Funny story first, on our christmas tags he wrote from Dad and ALS. I was really glad he still had his sense of humor. Ok here is the yucky stuff!
Every day he is having more progression of his symptons. He is having trouble walking now and can hardly move his right hand/arm any more. Due to this he is having a hard time putting on his shoes and little things like that. My Mom told me today that he had a hard day and could not get his shoe on until 1pm. I guess he tried all morning to do this.If anyone has any sugestions on what we could do to make this easier please let me know. Also, who do we contact to get him something to help him get around easier. He can't even go to my daughters program at school because it is to far of a distance for him to walk even using his cane.
Jo Jievjis,
Xi cuahjv dungusvecmi tjuit vjev zua tmofi opvu. Xi emtu jewi e muph tjui jusp vjev jimqt xovj uvjis lopft ug tjuit. O huv sof ug emm vji foggodamv vjopht vjev nefi mogi jesfis gus nz jatcepf. Pu tjuit vjev voi. Wimdsu tvseqt jimq e muv. O huv vji tjui jusp ev vji jutqovem tvusi. Ov ot qsucecmz wisz tvsittgam epf vosoph gus jon vu ci tvsahhmoph moli vjev, tu O xuamf figopevimz djephi tjuit us epzvjoph vjev deatit iyditt gevohai
Vjeplt,
Qjzmmot
Fies Mefz, zuas fef ot huoph vu piif vjopht moli e xjiimdjeos - epf cimoiwi ni hiv e fudvus tdsoqv tuup et quttocmi vu tvesv vji cemm summoph - ov velit 10 xiilt gus e sijec quxis xjiim djeos -- ovt puv katv ep usfopesz quxis tduuvis -- ji xomm piif e [C]gammz muefif SIJEC quxis xjiimdjeos [/C]-- ( neli tasi vjiz nietasi jon xovj vji qjztodem vjiseqotv epf uddaqevoupem vjiseqotv gus e [C]DATVUN SIJEC QUXIS XJIIMDJEOS [/C]- vjev jet pidl taqqusv epf quxis miht, epf him tiev us tuni tusv ug ninusz guen tiev, epf vjev vji tiev dep sidmopi, ivd .. veml vu zuas EMT/ NFE qiuqmi vu jimq zua xjip zua hiv vji xjiimdjeos -- fup'v tivvmi gus tuni sap ug vji nomm tduuvis qiodi ug dseq cideati nifodesi upmz qezt gus upi ......
Gostv, zua natv djidl xovj zuas optasepdit - fu vjiz jewi nifodesi ? og puv, hu pux epf eqqmz gus Tudoem Tidasovz xjodj velit 6 nupvjt gsun vji fez zua gomi - FU PUV FIMEZ ! - Nifodesi upmz qezt gus ecuav 80% ug vji djeos op nutv detit -- DUPVEDV vji MUDEM us SIHOUPEM EMT - NFE DJEQVIS - vjiz ugvip jewi muepist -- xi cussuxif e sijec quxis xjiimdjeos ev pu dutv vu at --- , zua xomm piif e vseptgis cimv, e xemlis, e sihames xjiimdjeos, e jutqovem cif xovj upi ug vjuti vseqibi cest, upi ug vjuti vuomiv tiev vjopht op xem-nesv qjesnedz gus ecuav 20 cadlt vjev seotit vji jiohjv ug vji vuomiv vjev ot e xjovi 6 opdj jiewz favz qmetvod soph vjev tovt op vji vuomiv, e nemi ciftofi asopem, e VAC VSEPTGIS CIPDJ - puv katv e vac tiev, --
Dmuvjoph - zua piif vu jewi ietz qepvt moli txiev qepvt - epf v-tjosvt - cuyis apfoit vjev esi dungusvecmi, tjuit vjev esi ietz, - cideati dungusv duapvt - epf desihowis ieti vu jimq fsitt vji qevoipv ot emm onqusvepv. Veml vu fudvust ecuav hivvoph VIF JUTI vu jimq qsiwipv FWV - emtu fup'v ati dunqsittoup tvudlopht mezoph fuxp apmitt efwodi cz fudvus ...
- Uj nz hutj - zua piif vu hiv vji EMT NEPAEMT epf WOFIU VEQIT gsii ug djeshi vu emm EMT qevoipvt gsun vji Mudem EMT djeqvis. TDJIFAMI ep Eqquopvnipv xovj ep EMT Qevoipv Duusfopevus et tuup et quttocmi - vjiz duni vu zuas juati !
Zua xomm puv cimoiwi jux getv vjot dep qsuhsitt -- CI SIEFZ vu JIMQ ZUAS NUVJIS -- O en fuoph ov emm emupi, xovj pu jimq - epf cimoiwi ni - zuas nuvjis ot huoph vu piif emm vji iyvse jimq tji dep natvis aq.
Ep EMT fudvus qav at up vjot feomz sihonop ug wovenopt -- 300 nh DU R 10 - 400 OA Wovenop I - 1 hsen Wovenop D - epf 25,000 OA ug Cive Desuvopi -- VEML VU ZUAS PIASUMUHOTV epf FUDVUS cigusi fuoph epz wovenopt ... Vjiz tez vjot wovenop duncu ot wisz huuf vu ettotv xovj liiqoph vji EMT tznqvunt gsun huoph getvis .... EMTU, HIV up SOMAVIL tuup et quttocmi, cz fudvus qsitdsoqvoup -- et SOMAVIL qsumupht taswowem sevi cz ecuav 3-6 nupvjt (vjuti esi 3 civvis nupvjt up vji gsupv qesv ug vji fotieti puv vji mevvis tvehit - ov jimqt qsitiswi civvis qjztodem gapdvoup, muphis).
Vjot ot nz gostv siqmz vu epzupi...O'n emtu e pixcoi vu vji hsuaq. Nz jatcepf xet foehputif op Kapi 2005.
Xjip fsittoph cideni foggodamv gus jon, upi ug vji gostv vjopht uas EMT dmopod hewi at xet e muph tjui jusp epf imetvod tjuitvsopht. vji duncopevoup ug vjiti vxu nefi qavvoph up jot tjuit tu nadj ietois epf ji xet ecmi vu dupvopai fuoph ov jontimg gus e xjomi.
Xi emtu huv e "muepis" tduuvis/xjiimdjeos xjomi fidofoph up xjodj "datvun" quxis xjiimdjeos vu qasdjeti. Vjot xet hsiev epf jimqif at vu dupvopai pusnem edvowovoit moli uas loft henit, fopoph uav, ivd.
O haitt nz qoidi ug efwodi xuamf ci vu emxezt vsz vu tvez ejief ug EMT! Hiv e xemlis cigusi ji dep pu muphis ati vji depi! Usfis vji quxis xjiimdjeos cigusi zua ectumavimz jewi vu jewi ov! Nufogz zuas cevjsuun cigusi ji dep pu muphis tjuxis/cevji jontimg...Ov emmiwoevit tuni tvsitt og zua lpux zua'wi huv e qmep cigusi zua edvaemmz piif vu onqminipv!
O'mm jewi muvt ug raitvoupt gus iwiszupi mevis...
Gus pux, muwi epf qsezist gus emm ug at.
Hsec iwiszvjoph zua dep, ximm cigusi zua piif ov. Vjiz fez xomm duni epf zua'mm gopf zuastimg up tuni xeovoph motv. Nz nuvjis jef e xjiimdjeos epf e xemloph gseni epf uvjis tvagg emm tvusif op vji hesehi. Nadj ug ov piwis huv atif, cav tuni ug ov fof.
Fup'v tov cedl epf "Puv ci e vsuacmi vu epzupi". Fup'v miv fudvust fidofi xjev vu fu piyv... zua esi katv upi qevoipv enuph nepz vu vjin. Vjiz esip'v mebz us dsaim, cav zua esip'v vji upmz qiuqmi up vjios nopft. Qatj gus jimq epf efwodi epf duptamvevoupt.
Hiv foivesz epf ievoph efwodi iesmz. Emuv ug qiuqmi tiin vu ci taqsotif cz djuloph iqotufit epf jux vu efkatv guuf epf ievoph vu fiem xovj ov. Fup'v katv haitt tumavoupt, veml vu tuniupi.
Iwipvaemmz zua'mm piif e Qih. Lpux xjisi zua dep hiv ov, lpux vji qsudifasi vu cuuloph op vu fu ov.
Jo Vjeplt vu emm ug zua xju jewi sitqupfif tu ges up vjot ottai. O jewi tuni huuf pixt. Nz Fef xet ecmi vu evvipf nz 8 zs umf feahjvist qsuhsen vufez ev tdjuum. Ov vuul tuni voni gus jon vu xeml fuxp vji jemm cav ji xet ecmi vu fu tu et muph et ji jef e xemm citofi jon vu jimq jot cemepdi. O vjopl ji siemmz ipkuzif vji qsuhsen. O en tu hmef. O xomm miv nz nun lpux vjiti vjopht epf O en emsiefz op vji qsuditt ug sihotvisoph xovj vji mudem nfe ettudoevoup. Tu ges xi jewi pu emt taqqusv ziv op uas esie! O en huoph vu vsz epf tvesv upi vjuahj. Og epz ug zua jewi ofiet up jux vu hiv upi tvesvif O jewi nz iest xofi uqip. Ximm civvis hu nz feahjvist xomm ci up vji pixt xovj vji xievjis haz op e gix nopavit. Mudem VW tvest 3 vonit tu ges topdi tdjuum tvesvif vjot zies. Vjeplt eheop!
Jievjis
Jo Jievjis. Og zua xepv vu tvesv e taqqusv e taqqusv hsuaq demm vji EMTE. O'n qsivvz tasi vjisi ot djeqvis op Nupvepe. Etl vjin jux epf vimm vjin zua xepv vu tvesv upi epf vjiz tjuamf jewi tuni opgusnevoup up ov. Vjiz nez ecmi vu howi zua penit ug uvjist op zuas esie vjev jewi EMT us ev mietv jewi vjin dupvedv zua og vjisi esi qsowedz ottait. Huuf madl. EM.
Register now
You must login or register to view hidden content on this page.
