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peggyboop

New member
Joined
Jan 17, 2008
Messages
4
Reason
Loved one DX
Diagnosis
08/2007
Country
US
State
MD
City
Baltimore
Hi All!
Mom was diagnosed with ALS in August. Second opinion agreed in Dec. She has been experiencing the jumpy leg issue at night for about 8 weeks. ALS doc wants her to see a sleep disorder doc. Appointments are impossible to get any time soon! Any one else having this problem? I keeps her up most of the night! She is exhausted!
Help:confused:
 

kelly

Senior member
Joined
Oct 6, 2006
Messages
661
Country
US
State
ny
City
saratoga springs
jumpy legs

Hi,
My husband has also been having the jumpy leg thing and it keeps him (both of us) up all night. We have tried to different sleeping pills, sleepy time tea, muscle relaxers...still looking for answers. We have been told that he has spastic ALS. We joke that if he put a pedometer on he would have run miles. Laugh or cry...right! Still looking for sleepy ideas. Good Luck.
 

Steve100

Distinguished member
Joined
Oct 5, 2007
Messages
164
Reason
CALS
Diagnosis
10/2007
Country
UK
State
Wales
City
Cardiff
My Mother takes Amitriptyline for this. It's an anti-depressant, but one of its side effects seems to help control her legs. Hope this helps.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
I've always suffered from jumpy legs, now I have this and cramps as well. Quinine helps, as does stretching frequently. I also keep my legs propped up as often as possible. LOL, in October I was on a week of jury duty, which required long hours of sitting. Not easy when your body has a mind of its own. So I asked for an extra chair to put my feet up on whenever we were in the jury room. At one point a court officer checked in on us and expressed surprise to see me in nearly reclining position

"Can we do anything else for you," he quipped, "Like bring you a drink with a little paper umbrella in it?"

I didn't miss a beat. I told him. "Why thanks, officer. I am sure we will all appreciate a tray full of those fancy drinks!:-D
 
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