J’s thread

Jam22

New member
Joined
Mar 1, 2025
Messages
2
Reason
Learn about ALS
Diagnosis
00/0000
Country
ZA
City
Cape Town
I’m 33 years old women. No family history of ALS.

Middle January 2025 , my ring and pinky finger on right hand felt weird - like in the way when writing, and clumsy when typing.

I have a history of cubital tunnel symptoms - like when sleeping or driving or using my phone - I would get pins and needles int ring and pinky finger. I saw an orthopod - who suggested it could be cubital tunnel, but he said the sensory symptoms are more pronounced before motor fallout, and after the pins and needles have resolved I don’t have any numbness in those fingers. He also noted no atrophy in my hands.
I am unable to flex my pinky on the right at the PIPJ without also flexing my ring finger (this is asymmetrical to the left side).

Shortly after that, my right foot/leg also started feeling weird when walking on treadmill. It felt like it was slapping down more, but I have normal ankle dorsiflexion and plantar flexion.

I then developed a twitching eyelid on the right that last a full ten days - then resolved.
This was followed by fasciculation’s in right bicep - only once or twice- and now fasciculation’s in middle finger on the right.

I have OCD and health anxiety. And as a result am trying to “sit” with my anxiety and not rush to see a doctor and not get a battery of expensive tests my family cannot afford. But as is the nature of OCD, I worry about disregarding something serious.

Does this sound like ALS and should I see a neurologist?
 
No, but getting more/better counseling for OCD/health anxiety, even via text, could be a good move, so as not to drown in the fears.

A physio evaluation ordered by your GP shouldn't be too pricey and could help you learn a home exercise regimen that could unkink your fingers. Avoiding repetitive motion and taking breaks, not lying/sitting on your hands/arms are other strategies to consider.

I would also stay away from self-testing, which tends to feed on itself. Instead, spend that time doing something that relaxes you or meeting up with some new people who can help you stay grounded.
 
Sorry I am back. When I exten my thumb on the right the muscle/tendon really pops out, when it’s relaxed not so much. Does this look like thenar atrophy?
 
Last edited by a moderator:
Please stay off this site and anything related to ALS. It can only harm your health.

Photos are not allowed, but I see nothing sinister in yours. Thumbs get a lot of wear and tear. Fortunately, they function better than they look.

If yours bothers you, give it a rest, and I'll repeat my PT suggestion.
 
Back
Top