curious vincent
New member
- Joined
- Aug 9, 2008
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- NJ
- City
- West Orange
Hi All,
I've read through some of this forum and I admire the courage displayed by many who have been diagnosed and are so willing to take the precious time to share here.
I've been "not quite right" for about 6 months now. It started with some overall fatigue and muscle cramping in my hands. About 1 month in, the fasiculations began. They were very random and all over at first but have progressed a bit to "pop up" more often when I use or stretch a particular muscle. I've developed a noticable atrophy in my left hand on the top side below my pinky and ring fingers. The fingers still work, but are bending a bit and have become somewhat clumsy. My right hand has also become stiffer and a bit weaker in the thumb and wrist area. It is also a bit more clumsy when I try to operate a cell phone or pick up things with just my thumb and index finger. There seems to be a slight atrophy developing in my right palm at the Thumb muscle. Also, it has become much harder to hold onto anything weighty such as my kids for any length of time. As both my hands and arms seem a bit weaker overall - I do not have any noticable leg issues so far.
I've been to 3 Neuro's including an MND Specialist in RWJ Hospital Department of Neurology in New Brunswick NJ. Had numerous blood tests an MRI and 2 EMG's. The 2nd NCV revealed a slight neuropathy in my left ulnar nerve.....neither of the EMG's revealed any muscle damage. I do realize that the Neuropathy could be causing the muscle atrophy...however I have no pain or tingling and this does not account for symptoms in my right hand. The Neuro's seem to think that I do not have ALS, however I remain very concerned as my symptoms seem to be progressing ...even if it is a slow progression.
About a month ago I began noticing that it seemed more difficult for me to open my mouth wide to take a bite of something like a sandwich or hamburger. This was followed by my jaw clicking on the left side and some facial numbness on the left cheek that comes and goes. Also twitching began in my neck. I do not have any pain associated with my jaw and face. The clicking seems to be getting a little worse each week.
On top of my hand problems...I've become a bit freaked out by my Jaw & Cheek issues ....has anyone experienced this type of problem? I'm a 45 year old male.
Thanks
I've read through some of this forum and I admire the courage displayed by many who have been diagnosed and are so willing to take the precious time to share here.
I've been "not quite right" for about 6 months now. It started with some overall fatigue and muscle cramping in my hands. About 1 month in, the fasiculations began. They were very random and all over at first but have progressed a bit to "pop up" more often when I use or stretch a particular muscle. I've developed a noticable atrophy in my left hand on the top side below my pinky and ring fingers. The fingers still work, but are bending a bit and have become somewhat clumsy. My right hand has also become stiffer and a bit weaker in the thumb and wrist area. It is also a bit more clumsy when I try to operate a cell phone or pick up things with just my thumb and index finger. There seems to be a slight atrophy developing in my right palm at the Thumb muscle. Also, it has become much harder to hold onto anything weighty such as my kids for any length of time. As both my hands and arms seem a bit weaker overall - I do not have any noticable leg issues so far.
I've been to 3 Neuro's including an MND Specialist in RWJ Hospital Department of Neurology in New Brunswick NJ. Had numerous blood tests an MRI and 2 EMG's. The 2nd NCV revealed a slight neuropathy in my left ulnar nerve.....neither of the EMG's revealed any muscle damage. I do realize that the Neuropathy could be causing the muscle atrophy...however I have no pain or tingling and this does not account for symptoms in my right hand. The Neuro's seem to think that I do not have ALS, however I remain very concerned as my symptoms seem to be progressing ...even if it is a slow progression.
About a month ago I began noticing that it seemed more difficult for me to open my mouth wide to take a bite of something like a sandwich or hamburger. This was followed by my jaw clicking on the left side and some facial numbness on the left cheek that comes and goes. Also twitching began in my neck. I do not have any pain associated with my jaw and face. The clicking seems to be getting a little worse each week.
On top of my hand problems...I've become a bit freaked out by my Jaw & Cheek issues ....has anyone experienced this type of problem? I'm a 45 year old male.
Thanks