Jeffreyp
Active member
- Joined
- Aug 14, 2013
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 08/2013
- Country
- US
- State
- MO
- City
- Cape Girardeau
Hello everyone-- Wife was diagnosed Sept 2013 with bulbar onset then that called off when they found lymphoma. She had 5 chemo but bulbar symptoms progressed so now they do not think the lymphoma was cause of neuro issues and stopped chemo. New doctorc wants to try IVIG because of sarcoid diagnosis in 2005--he thinks maybe all conditions stem from a problem with her immune system. Has anyone had IVIG therapy and what were results?
Big problem now is constant coughing, and "attacks" with gasping and moaning noises coming from throat-- she describes this as starting with a dry spot in the throat. One of doc thought might be laryngeal spams. Any ideas about how to manage these "attacks;. Did ake her to ER and they say airway is not blocked, lungs are clear and open and she is not aspirating.
Thank you for any help.
Big problem now is constant coughing, and "attacks" with gasping and moaning noises coming from throat-- she describes this as starting with a dry spot in the throat. One of doc thought might be laryngeal spams. Any ideas about how to manage these "attacks;. Did ake her to ER and they say airway is not blocked, lungs are clear and open and she is not aspirating.
Thank you for any help.