WendyWooG
Senior member
- Joined
- Jan 10, 2016
- Messages
- 519
- Reason
- PALS
- Diagnosis
- 07/2016
- Country
- Uk
- State
- Hertfordshire
- City
- Stevenage
Hi
I was initially diagnosed with mnd but as I was presenting with purely lower motor neurone symptoms my neuro felt there was a possibility of MMN.
I have had a partial initial treatment of Ivig, they only got 3 of the 5 doses into to me as I had an allergic reaction and felt quite ill even though they loaded me with antihistamines and steroids. They are going to try again with a different brand in 6 weeks.
At the moment I just feel exhausted, I tire so much more easily than before, I have constant headaches and the muscle jumping and cramping has got worse. Treatment was two weeks ago and the symptoms are easing a bit but I don't feel any stronger, how do I tell is it an obvious improvement or a slow one?
Thank you
Wendy X
I was initially diagnosed with mnd but as I was presenting with purely lower motor neurone symptoms my neuro felt there was a possibility of MMN.
I have had a partial initial treatment of Ivig, they only got 3 of the 5 doses into to me as I had an allergic reaction and felt quite ill even though they loaded me with antihistamines and steroids. They are going to try again with a different brand in 6 weeks.
At the moment I just feel exhausted, I tire so much more easily than before, I have constant headaches and the muscle jumping and cramping has got worse. Treatment was two weeks ago and the symptoms are easing a bit but I don't feel any stronger, how do I tell is it an obvious improvement or a slow one?
Thank you
Wendy X