Mike001
Member
- Joined
- Jul 30, 2015
- Messages
- 24
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Cardiff
Ok, firstly I hope everyone is a well as they can be and thank you for being welcoming. I'll start off with apologising because I feel as if I shouldn't really post on here but I'm driving myself crazy! I'm a 26 year old male, 6'5, 12 stone, and slim (Don't know if that even has relevance) But i'll give you a little insight into what's been happening from the beginning .
One morning back in September of last year I woke up and I couldn't speak, all my word made no sense at all, it wasn't slurred, it was just a load of jumbled up words. That lasted about an hour and come back, so I was told to go to A&E and was treated for a TIA (Minor stroke).. I had a CT scan of my brain and an MRI, all my bloods taken, and it was ruled out by a neurologist of being a TIA and I was sent home. From that day thing's started to go down hill.
I started noticing I was kicking the floor with my right foot, and one of my toes kept losing sensation in it and still to this day it doesn't feel right and contracts and twitches. In a space of a few weeks I woke up on a few occasions with no feelings in my arms and then after 5 minutes it come back. I lost vision in my left eye and my hand, arm, face, lips, tongue went numb for around 30 minutes. I had a spasm in my left hand that was making it close up involuntary which lasted a few hours. My right thumb went numb for around 2 months, then the sensation come back. I was having different spots of burning sensations going to different parts of my body and full body involuntary spasms and limb jerks.
Now that's been over the last 10-11 months all intermittently (which I understand isn't the case with ALS, and I know sensory symptoms is not usually a sign) but this is the problem at the moment. The burning has stayed in my feet, calves and up my legs. That's been there for around 5 months and only seems to be there when I'm either sat or laying down. Now the last 2 months I'm getting constant multiple little fasciculations that started in right calve in a few spots, and now it's in my left calve and in the back of my right arm as well (where the burning has been) I fear the burning is my nerves being killed and the twitching is secondary to the muscle dying. I've noticed a loss of dexterity in my right hand and also jerking of the right arm. I have perceived weakness in my arms and legs, they get tired doing little tasks that require minimal effort like holding up my phone, they tire easy. I shallow breath and sometimes randomly get an involuntary gasp of air. I have phlegm constantly in my throat and I keep messing up my words and slurring.
I've had another MRI or my brain and C-Spine and all come back clear and MS has been ruled out. I have had all my bloods tested and all fine, no diabetes etc.. and I'm just driving myself INSANE constantly searching symptoms and my fears on Google (I know I'm a complete idiot for doing it, but I really can't stop it) I do suffer with health anxiety and I am a hypochondriac but please don't let that desensitize how real the symptoms are (If that's the right word). I will be the first to admit that, I just feel all of this is too much to be put down to stress and anxiety. The burning is horrific! Again, I really am sorry for being a pain, but I've just got nobody to turn to, and I can't see a way out of this rut I'm in. Please could somebody just speak to me, I know nobody can diagnose me, but I'm scared.
Thank you in advance, Mikey. P.S (sorry for the novel)
One morning back in September of last year I woke up and I couldn't speak, all my word made no sense at all, it wasn't slurred, it was just a load of jumbled up words. That lasted about an hour and come back, so I was told to go to A&E and was treated for a TIA (Minor stroke).. I had a CT scan of my brain and an MRI, all my bloods taken, and it was ruled out by a neurologist of being a TIA and I was sent home. From that day thing's started to go down hill.
I started noticing I was kicking the floor with my right foot, and one of my toes kept losing sensation in it and still to this day it doesn't feel right and contracts and twitches. In a space of a few weeks I woke up on a few occasions with no feelings in my arms and then after 5 minutes it come back. I lost vision in my left eye and my hand, arm, face, lips, tongue went numb for around 30 minutes. I had a spasm in my left hand that was making it close up involuntary which lasted a few hours. My right thumb went numb for around 2 months, then the sensation come back. I was having different spots of burning sensations going to different parts of my body and full body involuntary spasms and limb jerks.
Now that's been over the last 10-11 months all intermittently (which I understand isn't the case with ALS, and I know sensory symptoms is not usually a sign) but this is the problem at the moment. The burning has stayed in my feet, calves and up my legs. That's been there for around 5 months and only seems to be there when I'm either sat or laying down. Now the last 2 months I'm getting constant multiple little fasciculations that started in right calve in a few spots, and now it's in my left calve and in the back of my right arm as well (where the burning has been) I fear the burning is my nerves being killed and the twitching is secondary to the muscle dying. I've noticed a loss of dexterity in my right hand and also jerking of the right arm. I have perceived weakness in my arms and legs, they get tired doing little tasks that require minimal effort like holding up my phone, they tire easy. I shallow breath and sometimes randomly get an involuntary gasp of air. I have phlegm constantly in my throat and I keep messing up my words and slurring.
I've had another MRI or my brain and C-Spine and all come back clear and MS has been ruled out. I have had all my bloods tested and all fine, no diabetes etc.. and I'm just driving myself INSANE constantly searching symptoms and my fears on Google (I know I'm a complete idiot for doing it, but I really can't stop it) I do suffer with health anxiety and I am a hypochondriac but please don't let that desensitize how real the symptoms are (If that's the right word). I will be the first to admit that, I just feel all of this is too much to be put down to stress and anxiety. The burning is horrific! Again, I really am sorry for being a pain, but I've just got nobody to turn to, and I can't see a way out of this rut I'm in. Please could somebody just speak to me, I know nobody can diagnose me, but I'm scared.
Thank you in advance, Mikey. P.S (sorry for the novel)