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esrich

Member
Joined
Aug 5, 2007
Messages
28
Reason
PALS
Diagnosis
11/2007
Country
US
State
OK
City
Ardmore
We went to the MDA/ALS clinic in Oklahoma City today and Eddie received an official diagnosis of ALS. The good news is apparently it is progressing very slowly. His FVC was 92 sitting and 88 lying down. They took into consideration he started smoking when he was 13 and didn't quit for good until he was 43. Everyone there was great. Very upbeat and positive. No doom and gloom. Very helpful with lots of information. So we go forward from here.

Shelly
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Sorry to hear the bad news Shelly but glad it's slow moving. Take it one day at a time.
AL.
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Shelly -

The diagnosed is bad but I'm glad Eddie's receiving good care. With the advances being made in medical care these days, slow progressors have more reason than ever to be hopeful.

Liz
 
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brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
Shelly,

Sorry to hear about Eddie. Glad the docs were upbeat about progression!
 

esrich

Member
Joined
Aug 5, 2007
Messages
28
Reason
PALS
Diagnosis
11/2007
Country
US
State
OK
City
Ardmore
Thank you all for your support.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hello Shelly, so sorry to hear about Ed. A little piece of the universe goes black every time a new PAL joins the group. Cindy
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
State
Texas
City
Tomball
Hi, Shelly! Sorry to hear about Eddie's diagnosed. May God bless you both, and help you both through this doomed journey!

Irma
 

freddiesnetty

Distinguished member
Joined
Nov 2, 2007
Messages
239
Diagnosis
12/2006
Country
US
State
Tx
City
Houston
Hi Shelly,
Sorry to hear about the diagnosed...........stick around here I am new and I wouldn't make it through this with out all of the knowledgeable people, they truly are godsends. I look forward to coming here for some wonderful resources. Hang in there, it really is up to GOD now..........We will all be praying for you.God Bless You and Your Family:-D:-D
Annette
 
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