….since diagnosis. The weeks have been filled with telling everyone, from friends, to neighbors, to accountants, contractors and everyone in between. Filled the weeks with paving way for bathroom remodel to accommodate me, going to first clinic, therapists, voice banking and even squished a Disney trip in with my grandsons.
My every thought is ALS, the unrelated brain tumor found during MRI, the dignity loss that I will experience. I’m having trouble living in the moment as every movement with my arms reminds me of the nightmare to come.
I have a unique perspective since my first husband died of FTD, ALS variant. I’ve seen it, I’ve lived it and now I’m subjecting my new husband and family to the nightmare I lived.
Feel like I’m drowning. Thinking of putting an end to this in a dignified way. My grandsons are the only thing buoying my mood.
My every thought is ALS, the unrelated brain tumor found during MRI, the dignity loss that I will experience. I’m having trouble living in the moment as every movement with my arms reminds me of the nightmare to come.
I have a unique perspective since my first husband died of FTD, ALS variant. I’ve seen it, I’ve lived it and now I’m subjecting my new husband and family to the nightmare I lived.
Feel like I’m drowning. Thinking of putting an end to this in a dignified way. My grandsons are the only thing buoying my mood.