Alsmess
Member
- Joined
- Jul 27, 2019
- Messages
- 15
- Reason
- Loved one DX
- Diagnosis
- 07/2019
- Country
- TR
- State
- TR
- City
- Istanbul
Hello,
My father has ALS for 2 years.
He is not able to turn himself in the bed, or move his hands/arms. He never sleeps on his back because he says he cant doesnt feel comfortable of breathing on his back. He sleep or rest on his left or right sight but he wants to turn because he says he has pain around his hipbones/quad-leg bones when he lay on it, and we change it like every 20 minutes if he is awake. When he sleep, he wakes up like every 20-30 minutes at night too. She wakes my mother up like 15-20 times a night to make him turn or fix his hand placement etc. He may be calling my mother 100 times a day.
We bought a special comfortable chair(sofa) to him. He first starts to sleep on the double bed at night(my mother is sleeping in the floor because double bed is just required for my father to turn him to left and right). After 3-4 hours he wants to go chair and sleep there 2 hours and wants to go back to bed. In the day time also wants to move between sofa and bed like every hour. If we dont do the thing he want or offer something else he starts to cry. He has all symptoms , including crying-laughing, bulbar symptoms(hardly speaking, slurring words and it is very hard to understand what he says)
The life started to become unbearable for us. He is mentally weak and this makes the situation more unbearable for all of us. He get sleeping pills but even it doesnt help because he wakes up 20 times a night. During day he wants to move from bed to chair and vice versa for like every hour.
I dont know what we will do. I cant leave home when i want because my mother cant transfer him from chair to wheelchair/bed/toilet without manpower.
Is there any way to make him sleep without waking up so often? Doctor gave him antidepressants and pills to sleep better but although its sedating him it doesnt prevent him wake up like every 20-30 minutes. My mother is having so hard time. Please tell me if you have an idea that can make caring easier.
My father has ALS for 2 years.
He is not able to turn himself in the bed, or move his hands/arms. He never sleeps on his back because he says he cant doesnt feel comfortable of breathing on his back. He sleep or rest on his left or right sight but he wants to turn because he says he has pain around his hipbones/quad-leg bones when he lay on it, and we change it like every 20 minutes if he is awake. When he sleep, he wakes up like every 20-30 minutes at night too. She wakes my mother up like 15-20 times a night to make him turn or fix his hand placement etc. He may be calling my mother 100 times a day.
We bought a special comfortable chair(sofa) to him. He first starts to sleep on the double bed at night(my mother is sleeping in the floor because double bed is just required for my father to turn him to left and right). After 3-4 hours he wants to go chair and sleep there 2 hours and wants to go back to bed. In the day time also wants to move between sofa and bed like every hour. If we dont do the thing he want or offer something else he starts to cry. He has all symptoms , including crying-laughing, bulbar symptoms(hardly speaking, slurring words and it is very hard to understand what he says)
The life started to become unbearable for us. He is mentally weak and this makes the situation more unbearable for all of us. He get sleeping pills but even it doesnt help because he wakes up 20 times a night. During day he wants to move from bed to chair and vice versa for like every hour.
I dont know what we will do. I cant leave home when i want because my mother cant transfer him from chair to wheelchair/bed/toilet without manpower.
Is there any way to make him sleep without waking up so often? Doctor gave him antidepressants and pills to sleep better but although its sedating him it doesnt prevent him wake up like every 20-30 minutes. My mother is having so hard time. Please tell me if you have an idea that can make caring easier.