JenniLee
Active member
- Joined
- Mar 19, 2007
- Messages
- 38
- Reason
- PALS
- Country
- US
- State
- CT
- City
- NORWICH
Went to Columbia and was diagnosed w/ ALS. They did blood, EMG, Nerve Conduction and some deep cellular MRI. Dr. Gordon said minimal nerve damage & minimal progression. But my speech is almost gone, my hands are weak, my walking is unstable, foot drop, twitching, fatigue.
How do I cope when I am fading away. How do u fight it when u have 2 look @ your 5 & 6 year old girls; know there was so much u wanted 2 do w/ them. Everything I do is a struggle; brushing my teeth, getting dressed ( I can't put a bra on or zip a sweatshirt).
PLEASE, someone tell me what to do? How do I go on? I don't want to wake up in the morning; it's too hard. I don't want my kids seeing me like this.
Is there any POSSIBLE way the diagnosed is wrong?
Jen
How do I cope when I am fading away. How do u fight it when u have 2 look @ your 5 & 6 year old girls; know there was so much u wanted 2 do w/ them. Everything I do is a struggle; brushing my teeth, getting dressed ( I can't put a bra on or zip a sweatshirt).
PLEASE, someone tell me what to do? How do I go on? I don't want to wake up in the morning; it's too hard. I don't want my kids seeing me like this.
Is there any POSSIBLE way the diagnosed is wrong?
Jen