It Just Blows...

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I think I posted under the wrong thread but I was wondering what a rhumatoligist and an endocrinologist do? How can they help if you are not diagnosed with ALS? Sorry to post so many questions? For those of you that have family that have had ALS and now you suspect that you do- have you followed the same patterns or are they different? Have you been around the same age of DX? Are there genetic markers for ALS? I remember reading something about some protien that they can test for? Does this test have possibilites for being a test for ALS for the general population?
 
Pldo - I answered your questions under the other thread you posted on. I think this thread should be dead.....no offense Lou, nothing to do with you!
 
Wow, I have diagnosed with a motor neuron disease, and have been reading this forum for a while and have decided to join. I was a little miffed about the harsh language and uncaring words used to describe another member, NUTCASE, wow that does not seem like a caring forum, when members treat members like this.
I am dealing with a illness as are many of you on this forum, and I can understand how are feelings can get out of control, but we are all in this together. I appreciate all of the support it seems everyone is giving but do not scare me already...B
 
Leslie you are such a kind person, your the one scarying away new members.
ANXIETY, sure, I have a furrow tongue and a twitch in my tongue, but I guess I am lying about that, I go back to my specialist on th 17th. So i will keep you updated since you are so worried about me. Leslie I never said you did not have poly, but I dont why you are on als board. The rest of us are waiting for a als diagnosis, or are diagnosis.
Why do you care so much about making problems for people on this forum, thank you Dr. LTR
 
OK I thought I had made it clear. The next person to make snotty remarks to anyone here will be banned. I don't care who it is or how long you have been here. This is no place to start name calling. I think apologies are in order. If you disagree, there are other forums that might let you get away with it. Not here and this is the last warning.
AL.
 
Sanders915

Sorry Sanders915 that you had to come in in the middle of a peeing match. Most of us are really quite nice here and people get along and are helpful and supportive. A couple seem to be having a bad day. Stick around. It does get better.
AL.
 
Jenny - it's not for you to just join and tell who should be here or not. I think that would be up to the moderators? Apparently you know nothing about myopathy. The people on here followed my illness for a long time and I was asked to stay. I will repeat poly mimics als.....why can't you get that? I told Cindy you were going to cause problems for me because you talk to an ex member on the phone and, well, who was right?!

Lou, at least I recognize this thread was about you.....and back to you....I know you too were told you have myopathy (I'm sure you know who will ask why you are here now!) and I hope that you follow through with that diagnosed with a myopathy specialist....usually they are the same specialists as als because, well, you know why, but there are some clinics that are specifically for this. Johns Hopkins isn't too far from you is it?
 
Welcome

Sanders915 -

Welcome to the forum. I hope you will notice that the vast majority of visitors to this forum do not behave in the manner you describe above. It would be sad if new members are inhibited from participating for fear of being treated rudely. If you browse around old threads, maybe you can get a broader "feel" for the forum and all the good folks who visit.

Liz
 
Thanks for the kind messages, I think I will just stay clear of members who seem a little scary. This seems like a great place to share opinions and questions. Thanks for that.
 
This forum is a "community", you will find many different people here, as in any community or group.

I guess that sometimes the messages come accross a little harshly when typed and read vs being face to face, there is more room for misunderstandings. Most people are here to share, help and support each other. I am also a new member to this forum, although I have been viewing it for over 4 years.

Tina
 
Hi Sanders! It's nice to hear you are staying. Sorry, I meant to welcome you, but I had a hard time finding the right moment, and I am glad I finally got to do it. Tina is right. This forum is like a little community. We share our experiences, feelings, etc. It is a nice forum. No need for you to feel uncomfortable. I am not a Pals, I am a former Cal. If you have any questions, feel free to ask to ask. There are a lot of caring folks here that do not mind answering your questions. Again, welcome to the forum, and God bless!

Irma
 
Lou what is your next appt? do you have an appointment with a new neuromuscular specialist? hope you can get to the bottom of things.
Jenny sorry to hear this is happening to you, I think everyone who has a fear needs an ear. Thanks Al, seems some people just like to be unkind.
 
Why can't everyone just get along? Why are people so concerned about others diagnosis-there is life outside this forum. Please keep this forum a place for people to come and recieve support and caring words. Personally as an adult I would find it embarassing to act in this manner. I think this bickering should be saved for private messaging if the need overtakes one to want to be confrontational. It cheapens a wonderful forum that is meant for support.
 
My seniments exactly Mya.
AL.
 
Mya,

I started typing a repsonse to this yesterday and it was just about verbatum what you said.

I think we should all come to a gent's and ladies agreement, we offer support, kind words and kind advice. Worry about your own diagnosed and no one else's. This should keep things simple.

We all have enough in life to deal with, why should we come here and make more grief. This is most people's "get away", to come and talk to others, whom really understand. I mean...i come here because you people understand what i am going thru, wether this is related to ALS or not.

It's a forum of people affected by ALS, so, anyway it affects you is cause for a good welcome here.

Let's all get the Christmas spirit here.....drink a cup of eggnog....even a little rum in it would do a good trick...or if your AL...a good glass of red wine to keep the ole pumper (heart) happy.

And Mya...your baby is very very cute! I love kids.....they make your day....give you something to look forward to. Give you a good reason to pop out of bed....a good reason to hurry home from work and a good reason to think it is NOT ALS what i have or if i do have it, ALS will have to live with me b/c i won't live with IT.

Let's make this a good holiday for everyone. Let's all agree, if you don't have something good or supportive to say, just don't say it, or PM the person, otherwise........AL seems to be on a banning spree, please don't become the next fire for him, he's really good at putting them out..:mrgreen:

Good Weekend and a very Merry Christmas to all!

Rgds,

Jamie
 
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