ShellyRenee
Active member
- Joined
- Jun 23, 2005
- Messages
- 30
Hello to all,
Some may remember me most may not. A quick update. My (step)mom was diagnosed with ALS in May of 05. What a rollercoaster ride WE have been on. I care for my mother 7 days a week. We have now gotten help in their home around the clock.
Most every day is soooo draining caring for her. As of last Thursday she developed a U.T.I. also a rash that itches badly, her feeding tube has started to oooze icky puss and her vision has gone hay wire, meaning seeing double or blury and or dizzy. In one weeks time she went from being able to shake her head, sit up, motion with her hands write notes to now just being awake but off in left field. WHAT IS HAPPENING? Hospice can't give any answers. She is on a antibiotic now for the UTI but not much improvement at all. Is there hope that all of this was caused by the UTI and hope is around the corner or is this the end?
My mom to this day has not spoken about how she feels regarding ALS or dying. This is so very hard. Do I pray for her to go or do I pray for her to stay? What is the right thing? I wish I knew.
Thank you for letting me cry online. This disease is so very CRUEL...............
Shelly Fowler
Some may remember me most may not. A quick update. My (step)mom was diagnosed with ALS in May of 05. What a rollercoaster ride WE have been on. I care for my mother 7 days a week. We have now gotten help in their home around the clock.
Most every day is soooo draining caring for her. As of last Thursday she developed a U.T.I. also a rash that itches badly, her feeding tube has started to oooze icky puss and her vision has gone hay wire, meaning seeing double or blury and or dizzy. In one weeks time she went from being able to shake her head, sit up, motion with her hands write notes to now just being awake but off in left field. WHAT IS HAPPENING? Hospice can't give any answers. She is on a antibiotic now for the UTI but not much improvement at all. Is there hope that all of this was caused by the UTI and hope is around the corner or is this the end?
My mom to this day has not spoken about how she feels regarding ALS or dying. This is so very hard. Do I pray for her to go or do I pray for her to stay? What is the right thing? I wish I knew.
Thank you for letting me cry online. This disease is so very CRUEL...............
Shelly Fowler