bkite
Distinguished member
- Joined
- Sep 2, 2016
- Messages
- 131
- Reason
- PALS
- Diagnosis
- 06/2013
- Country
- US
- State
- Washington
- City
- Yakima
Last two weeks I have been sleepy or sleeping all the time.
I nap twice a day for 90 minutes. 8 hours at night.
I use the ventilator 20 hours daily on Passive AVAPS.
Spirometer testing last week was at 19% FVC.
Fluid and food intake is good through the MIC-KEY button.
No pain, just stiffness and pressure points in bed, relieved by getting rolled over every two hours through the night.
I don't use cough assist as I can still cough effectively to clear secretions.
Only new supplement is Lunasin.
Prescription drugs: Nudexta, atropine drop three times daily.
I nap twice a day for 90 minutes. 8 hours at night.
I use the ventilator 20 hours daily on Passive AVAPS.
Spirometer testing last week was at 19% FVC.
Fluid and food intake is good through the MIC-KEY button.
No pain, just stiffness and pressure points in bed, relieved by getting rolled over every two hours through the night.
I don't use cough assist as I can still cough effectively to clear secretions.
Only new supplement is Lunasin.
Prescription drugs: Nudexta, atropine drop three times daily.