Justsouno
New member
- Joined
- Jul 26, 2013
- Messages
- 1
- Reason
- Loved one DX
- Diagnosis
- 12/2011
- Country
- US
- State
- New York
- City
- CORAM
My husband was diagnosed in dec 2011. At that time his symptoms were loss of use of hands, muscle twitching, some weight loss, respiratory distress, paralyzed disphragm and diffuse muscle atrophy. Now, he has lost the ability to walk, has an nif of 10 , Fvc is 1.78, has severe dyspnea and has lost 80 lbs so far. His doctor has ordered home hospice, but no one can tell me how long he has. It is so difficult watching this robust, healthy man deteriorate to this point. He has the option of going to an inpatient hospice but I don't want to be the one to suggest that. Please anyone, can you tell me how much longer this agony will go on?