Mrman
New member
- Joined
- Feb 16, 2019
- Messages
- 5
- Reason
- Learn about ALS
- Country
- UK
- State
- London
- City
- London
Hi so to start with I’m male age 26
So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND),
They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat (you can hear it) which made me wonder if the problem was muscular.
After seeing neurologist, he said clinical exam was fine but ordered nerve conduction and EMG, that was also clean. The EMG was of limbs and tongue. Also had blood tests to look for protein caused by some muscular disorders and that was normal too!
I have a scalloped tongue and what looks like some tongue twitching.
Now I’ve noticed slight slurring, it’s more effort for me to speak than normal and there is some slurring. It’s not like a drunk at a bar, others don’t overly notice it but I do! My job requires lots of speaking so I know my own voice. It’s like my teeth don’t fit my mouth. This seems to have been getting worse over a couple of weeks. Tonight while eating mashed potato I thought I was going to choke, it was like i couldn’t swallow. I didn’t choke or cough but I had to swallow a number of times and I tried it again and again, it kept happening about three times. I thought I might choke. Did have drink after which was fine.
Naturally I’m anxious that’s a given! Does it sounds like Bulbar ALs or PLs?? I know ALS can only be diagnosed when it effects LMN and UMN but does that mean the neuro’s basically can’t say unless it effects LMN? So they can’t rule out PLS or PLS that could turn into ALS??
Don’t know what to do as neuro and pcd don’t take me seriously as just want to label it as anxiety! I don’t know what it is but it’s not that! Any help? Where do I go from here?
So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND),
They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat (you can hear it) which made me wonder if the problem was muscular.
After seeing neurologist, he said clinical exam was fine but ordered nerve conduction and EMG, that was also clean. The EMG was of limbs and tongue. Also had blood tests to look for protein caused by some muscular disorders and that was normal too!
I have a scalloped tongue and what looks like some tongue twitching.
Now I’ve noticed slight slurring, it’s more effort for me to speak than normal and there is some slurring. It’s not like a drunk at a bar, others don’t overly notice it but I do! My job requires lots of speaking so I know my own voice. It’s like my teeth don’t fit my mouth. This seems to have been getting worse over a couple of weeks. Tonight while eating mashed potato I thought I was going to choke, it was like i couldn’t swallow. I didn’t choke or cough but I had to swallow a number of times and I tried it again and again, it kept happening about three times. I thought I might choke. Did have drink after which was fine.
Naturally I’m anxious that’s a given! Does it sounds like Bulbar ALs or PLs?? I know ALS can only be diagnosed when it effects LMN and UMN but does that mean the neuro’s basically can’t say unless it effects LMN? So they can’t rule out PLS or PLS that could turn into ALS??
Don’t know what to do as neuro and pcd don’t take me seriously as just want to label it as anxiety! I don’t know what it is but it’s not that! Any help? Where do I go from here?