LizzyReed
New member
- Joined
- Nov 6, 2024
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- San Jose
Hi everybody! My name is Lizzy I’m 27 years old. First wanted to say I can’t wait for the day they find a cure for this nasty disease. Want to hear your thoughts… I was diagnosed with Chronic Fatigue Syndrome in 2018. Mild fatigue, brain fog, headaches, floaters.
Saw a Lyme doctor 2020 and was diagnosed with Lyme disease coinfections and mold. Was treated but due to the expense of it was unable to finish. 2023 I developed Long COVID. Since then I have had 24/7 shortness of breath, moderate fatigue (worsened from former), headaches, post exertional malaise, brain fog, back pain. Have seen a pulm and they think I have Long COVID. Just over a week ago I developed whole body fasiculations every day so far about 10-20 times per day. They come and go quickly within 3-7 seconds. They’re everywhere but have noticed they show on the right bicep, stomach, legs. And just last evening noticed my right arm feels heavy. It feels like it has concrete it, not blood. I find it more difficult to do things when it’s like this.
Also I don’t workout by the way. I have widespread atrophy just due to being less active as I used to be an athlete and a avid gym goer. I was prior working a job that required physical exertion but when I got Long COVID I took up a desk job. I am increasingly concerned about my twitches and arm heaviness. And now wondering if my breathing has something to do with it. I will add as well my back pain which I briefly mentioned above is on my right side as well and I notice it mostly when I’m sitting for a long period of time like a few hours. Anyways, wanted to hear your thoughts. I am very concerned and this has completely taken over my thoughts. I plan to see a provider and eventual neuro on this but am pending an appointment with my new primary until next Friday. Thanks for your time xxx.
Saw a Lyme doctor 2020 and was diagnosed with Lyme disease coinfections and mold. Was treated but due to the expense of it was unable to finish. 2023 I developed Long COVID. Since then I have had 24/7 shortness of breath, moderate fatigue (worsened from former), headaches, post exertional malaise, brain fog, back pain. Have seen a pulm and they think I have Long COVID. Just over a week ago I developed whole body fasiculations every day so far about 10-20 times per day. They come and go quickly within 3-7 seconds. They’re everywhere but have noticed they show on the right bicep, stomach, legs. And just last evening noticed my right arm feels heavy. It feels like it has concrete it, not blood. I find it more difficult to do things when it’s like this.
Also I don’t workout by the way. I have widespread atrophy just due to being less active as I used to be an athlete and a avid gym goer. I was prior working a job that required physical exertion but when I got Long COVID I took up a desk job. I am increasingly concerned about my twitches and arm heaviness. And now wondering if my breathing has something to do with it. I will add as well my back pain which I briefly mentioned above is on my right side as well and I notice it mostly when I’m sitting for a long period of time like a few hours. Anyways, wanted to hear your thoughts. I am very concerned and this has completely taken over my thoughts. I plan to see a provider and eventual neuro on this but am pending an appointment with my new primary until next Friday. Thanks for your time xxx.
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