is this als?

[vickim]

I like what Al said, "dig deep". Good for you, that's being a big girl to call the counseling clinic. Wonderful, it can help while you are waiting for your answers. Being it has only been 12 weeks since this all started I think points away from als, but if something is wrong you need to face it head on, with a clear head and make the decisions that need to be made.

 

[banksm]

Cheers guys. It is good to just get it off my chest, talk you know.

 

[vickim]

I wish you all the best, Chin up and all that.

 

[banksm]

I am waking up with such stiff lungs and am soon not going to be able to use the stairs in my 3 storey house. Where can I get help when i have no diagnosis? I have a4year old depending on me. I feel like I am in the worst king of nightmare!

 

[Mediasmart]

You need some professional help. If you are eventually clear of the ALS thing then you need help to pull yourself together and find out what is really wrong. If it is ALS, which most here are telling you is not likely(including your docs), then you are going to need major help with dealing with reality rather than the one floating though your brain.

 

[banksm]

Hey. If this isn't ALS, I won't need help. I will be ecstatic! My consultant has scheduled an emg because all other tests have come back negative, I have actual weakness in my legs, a curling left hand and problems with shortness of breath at night. It wakes me and leaves me with a head ache in the morning. I can't walk far and walk red a wheelchair to go any where. My doctors referred me to a specialist because they had concerns.

 

[banksm]

Sorry to post again. My breathing is badly affected at the moment and when I lie down it is like someone is sat on my chest my diaphram is so weak. However, my walking has really improved and the weakness in my arms seems to have lessened. Can symptoms improve? Sorry. Tell me the truth. I can take it. Saw an immunologist today and he said that he didn't think it was m.e or cfs. Please reply.

 

[Clearwater AL]

Nobody here is going to tell you the truth. Why? No one here is a doctor. You just don't get it.

An unqualified answer to your question. No.

 

[banksm]

Thanks Clearwater al.

 

[zoohouse]

We cannot tell you if you have ALS, and continually asking is like a child in a car going "are we there yet?" Even if you do have ALS there is no treatment except cutting out MSGs, taking a good multivitamin and being as healthy as you can be. Just keep on living, and stop wasting your time worrying about it; has it helped you so far? The definition of insanity is doing the same thing over and over again and expecting a different outcome. I am sorry if this sounds short, but I watch my husband struggling to breath, and to move his thumb just to adjust his chair, and still attempts valiantly to live his life to the fullest. He doesn't have the time to spend asking what next, he just does. Tonight we are going to a comedy show what are you doing?

 

[banksm]

Getting the table set up for my four year old's party. Sorry I seem to be pissing you off.

 

[affected]

every time one of these symptoms scares you - get yourself to a doctor

I can hardly believe you can come here and post these symptoms and make out like it is such a big deal and yet you aren't going to a doctor and saying - I can't breathe. They will test your lung functions.

zoohouse summed it up beautifully - you actually have no understanding of the physical issues PALS actually are living every day. why would PALS expend enormous energy to read, let alone reply to your constant posts?

continually posting here is not helping anyone, least alone you!

everyone has pretty much said this to you already, so I'm probably wasting my time

you would be far better staying off here and dr goo gle, spending time enjoying your 4 yr old and working with a doc you trust

 

[banksm]

I don't think you guys know what we are up against in Britain with the NHS. I have been to a and e countless times. We have 3months between neurology appointments because the waiting lists are so long. Itbis not like USA where you have choice. find a doctor you trust? I saw a neurologist in December. My next appointment is march. Go to accident and emergency at 9 am you may see someone at 9pm. You guys are living in a different world. I have been to the USA. It is all about choice and private care.

 

[Kosmoskatten]

I am myself in the process of being diagnosed, and I of course have moments when I am scared, worried as well as I have moments when I try to pull it together.

The process of waiting is stressful, but I try to think like this; if I do not have ALS or another progressive disease, be happy and live life to the fullest. But, here is the thing; if I do have ALS or another progressive disease, then I really have to live life to the fullest.

Neurology appointments need to be spaced out a bit as well, my doctor and I have discussed this. There is no point of taking an EMG per month, even if, it like mine, was abnormal.

Try to calm down, even if it is hard, and think positive.

 

[Barbie]

You are unbelievably self centered. Go find another forum to troll.