Squallx
Member
- Joined
- Dec 4, 2024
- Messages
- 15
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SE
Hi again! I wanna start by really thanking you who keep answering me and everyone else here in this forum. To just get some feedback from people who have real experience of this disease means the world to all of us. So again! Thank you so much! 
So time has passed since my last thread and I will see a neurologist for the first time on the 7th of January. I have some questions maybe some of you could help me with. My symptoms that have progressed are the following.
I now feel more fatigue than before with an overall feeling of being sick almost everyday.
My left leg feels weaker and has been buzzing almost constantly for weeks. And I have pins and needles in my left heel that come and goes. My limbs seem to fall asleep more often and sometimes it wakes me up in the night. But I don't seem to have any clinical weakness yet compared to my right side.
Sometimes I really feel that shortness of breath and it makes it even exhausting to talk. But it really comes and goes and sometimes from an hour till the next. On the 13th of January I will get a lung function test.
My voice is still hoarse, lower and sometimes feels quieter and like it takes more energy to talk and sing than before.
My throat feels progressively more stiff and weird. I get some pains and the feeling of cramps in the throat sometimes that really scares me! And I also often have that feeling that something is stuck there, like globus. I can almost still eat and drink like normal, it just sometimes feels like food is still in my throat and sometimes I have to swallow more than ones after drinking something.
Everything is not worse though and I have almost no fasciculations. Just some that comes and goes in often the same places, but are never constant.
I used to suddenly get very stiff muscles in my back, neck, calf and stomach but have not had that happen in about two weeks.
Also my neck pain has almost been gone for over a week now.
So what's left is what I feel is a progressively worsening throat and voice. That now more often recurring shortness of breath. A left leg and foot that almost constantly now feels weaker with the ongoing buzzing.
I did a barium swallowing test waiting for the results but the doctor told me right after the scan that he did not see anything going on.
I'm still as afraid of Als as before and my questions are:
Do you think als could present itself this way? With both the worsening throat, shortness of breath and left side leg weakness all coming on and progressing at the same time? And could stiffness in muscles, fasciculations and the neck pain suddenly just get better in als? And also, do you feel tired and sick when you have als? Like you have the flu but without the fever etc.
Any answer would mean the world to me!

So time has passed since my last thread and I will see a neurologist for the first time on the 7th of January. I have some questions maybe some of you could help me with. My symptoms that have progressed are the following.
I now feel more fatigue than before with an overall feeling of being sick almost everyday.
My left leg feels weaker and has been buzzing almost constantly for weeks. And I have pins and needles in my left heel that come and goes. My limbs seem to fall asleep more often and sometimes it wakes me up in the night. But I don't seem to have any clinical weakness yet compared to my right side.
Sometimes I really feel that shortness of breath and it makes it even exhausting to talk. But it really comes and goes and sometimes from an hour till the next. On the 13th of January I will get a lung function test.
My voice is still hoarse, lower and sometimes feels quieter and like it takes more energy to talk and sing than before.
My throat feels progressively more stiff and weird. I get some pains and the feeling of cramps in the throat sometimes that really scares me! And I also often have that feeling that something is stuck there, like globus. I can almost still eat and drink like normal, it just sometimes feels like food is still in my throat and sometimes I have to swallow more than ones after drinking something.
Everything is not worse though and I have almost no fasciculations. Just some that comes and goes in often the same places, but are never constant.
I used to suddenly get very stiff muscles in my back, neck, calf and stomach but have not had that happen in about two weeks.
Also my neck pain has almost been gone for over a week now.
So what's left is what I feel is a progressively worsening throat and voice. That now more often recurring shortness of breath. A left leg and foot that almost constantly now feels weaker with the ongoing buzzing.
I did a barium swallowing test waiting for the results but the doctor told me right after the scan that he did not see anything going on.
I'm still as afraid of Als as before and my questions are:
Do you think als could present itself this way? With both the worsening throat, shortness of breath and left side leg weakness all coming on and progressing at the same time? And could stiffness in muscles, fasciculations and the neck pain suddenly just get better in als? And also, do you feel tired and sick when you have als? Like you have the flu but without the fever etc.
Any answer would mean the world to me!
