I placed the following on another forum but so far no real responses...maybe someone here can answer, not looking for an excuse to go off the protocol, but honestly I'm not sure it's helping me at all:
I have been on the full Deanna Protocol for over 2 months. Prior to that, since June, I was taking AKG and AAKG, Glutathione, Methylcobalamin, Vitamins C & D, and Ashwagandha.
Currently I do not take Ashwagandha, but I do take everything else on the latest Deanna protocol list plus vitamins, protein powder and trehalose.
Before I started any of the protocol, I considered myself to be rather slow progression wise. My speech, and some swallowing difficulties were the only symptoms I had for about 2 years. Then left thumb/forefinger, about 1 year ago. Twitching has always been a presurser for me...when my left arm and hand started to twitch, then weakness followed.
Since being on the Deanna Protocol, my speech, swallowing, and weakness in left hand has continued to digress. I have also developed weakness in my right hand fingers, although not nearly as bad as my left hand. Also, twitching seems to have increased slightly, no matter how much AKG I take. It's not horrible but still noticeable.
Another possible side effect is that I have started to lose weight, not a lot, but about 6 lbs so far. Before I started all the supplements I was maintaining my weight. To be honest I cannot eat like I did before so I'm sure that has an effect. Also, I tube all the supplements which involves a lot of water, sometimes I am sure it floods into my intestines before it's well absorbed.
How long is the average person on the protocol before they start to notice their progression slowing down?
Has anyone's progression actually sped up after they started the protocol? I know that seems far fetched but with this disease anything' possible!
Thanks for reading,
Joel