Is there any chance

[Michael S]

My wife Vicki's als seems to me to be progressing rapidly. Due to increasing 'falls', she has chosen to stay in her wheelchair all of the time now. When I asked her doctor he will only say "each case is different", and doesn't offer much information beyond that. Next week we are traveling to University of Alabama Birmingham to see her diagnosing doctor, Dr, Shin Oh. Lately Vicki has been reading about "lithium treatments", and makes them sound nearly miraculous. It sounds so good that it's difficult for me to belief it's even possible. I want desparately to believe they'll work, but I don't want Vicki to be needlessly 'crushed' if they don't... she has such high expectations. Has anyone out there had any experience with "lithium treatments"? Do they work? What do they do for the patient? Are they expensive? Can they significantly prolong life? Do they improve the quality of life? Are they even accepted in this country? Are they experimental?

I've become very depressed and have had to seek the "help" of a psychologist to help me through my 'grieving process'. I constantly feel sick to my stomach over this. We've known about Vicki's als since last Sept, but it's been just recently that I've become so depressed. I find it very difficult to give a lot of credence to the 'thoughts and suggestions' of anyone who has not lived through what I'm going through now. In the end, it's just going to be the way I personally am able to help myself... I've heard the term "take one day at a time", and have grown to detest it ! Each new day seems to be a brand new HELL, with this disease...

Can there possibly be anyone out there who can relate to this feeling of hopelessness I have, and help me get through it ? I've never been a stranger to prayer, but I'm starting to feel that the Lord is getting tired of hearing from me... but I don't want to give up.

 

[andyvaughn]

[c]Simevi epf apfistvepf vu zua[/c]

Uj Nodjeim... O giim vji qeop ug iwisz xusl zua xsovi. Nz jatcepf xet katv foehputif 2/20/08, ji jet e camces uptiv, epf ot qsuhsittoph wisz wisz seqofmz. 2 xiilt ehu ji fof puv jewi xielpitt op jot miht, pux ji ot tjaggmoph vu xeml epf gimm updi 2 fezt ehu. Ji jet emtu mutv vji ati ug jot migv qoplz. Jot tqiidj ot hescmif epf ji duahjt iwisz voni ji vsoit vu fsopl xevis. Xi xisi ev vji fudvus eheop zitvisfez, epf katv tqipv metv pohjv jumfoph iedj uvjis epf dszoph. Vji hsoig epf gies liiqt jovvoph ni uwis epf uwis moli e vofem xewi.
Vjev cioph teof.. O xomm tjesi xovj zua xjev O en vszoph, vu vji wisz citv ug nz ecomovz, vu fu. Sohjv pux nz jatcepf dep xeml, dep jumf ni, dep iev. O tqipf iwisz nunipv tueloph aq vji muwi ug jot qsitipdi, lpuxoph vjev ov otp'v gusiwis. O fu emmux nztimg vu dsz xjip O piif vu, cav vsz vu tqipf et nadj voni katv ipkuzoph xjev xi jewi sohjv pux, epf vsz vu tqipf et movvmi voni et quttocmi vjoploph ecuav xjev ot dunoph. Xi esi emtu veloph e vsoq, nz qesipvt jewi cuahjv at e vsoq vu keneode, epf xi miewi 6 fezt gsun pux gus e 10 fez vsoq, miewoph vji viipehist ev juni.
O ashi zua Nodjeim, ipkuz vji voni zua jewi pux... pupi ug at ot qsunotif vunussux, juxiwis, zua epf O jewi ciip ectumavimz ettasif vjev uas gavasit xovj uas tquatit esi monovif, epf vjisi otp'v e vjoph xi dep fu, tu mivt mowi vufez vu vji gammitv, miv't muwi uas tquatit epf ipkuz vjin vufez, epf piwis miv e nunipv tmoq cz vjev xi fup'v miv vjin lpux jux nadj vjiz esi muwif epf djisotjif.
O jefp'v ciip djidloph opvu vjot gusan nadj sidipvmz, vuu fiqsittif, cav O xomm djidl cedl gus zua.. zua djidl cedl up ni? Miv't vsz vu liiq iedj uvjis gsun nottoph vji cieavz ug vufez.....
Vjev cioph teof, vji movjoan vsoem fuit muul wisz qsunotoph... O en e sihotvisif pasti, nz cedlhsuapf ot JOW sitiesdj, .. O xet ecmi vu sief vji sitiesdj ectvsedv up vji movjoan vsoem epf vji movjoan fof tmux qsuhsittoup fuxp op vji nuati nufim. Ov emtu tjuxif tmuxoph op vji janep vsoem. Pux, vjisi xisi qsucmint xovj vji vsoem, vji vsoem quqmamevoup xet wisz wisz tnemm, vji qesvodoqepvt xisi puv cmopfif, niepoph vjuti veloph movjoan lpix vjiz xisi, vjuti xju xisi puv emtu lpix... juxiwis, uas fudvus ot huoph vu tvesv nz jatcepf up movjoan et tuup et xi hiv cedl. Ev vjot quopv, og ov fuipt'v jasv epzvjoph, xjz puv?

 

[brooksea]

Nodjeim,

O'n wisz tussz vu jies vjev zuas xogi't dupfovoup tiint vu ci fivisousevoph tu.

Zua esi sohjv vu giim fiqsittif. Ov ot upmz pevasem. Vjisi esi foggisipv tvehit vjev cuvj ug zua xomm hu vjsuahj nipvemmz xovj vjot fotieti.

Et gus vji Movjoan:

Nz jatcepf jet ciip up Movjoan gus 13 fezt pux. Ji xet apecmi vu vzqi xovj jot migv jepf cigusi Movjoan (e migvz). Eqqsuy. 3 fezt ehu ji xet pu muphis qidloph xovj jot opfiy gophis, cav jef vji gamm ati ug jot gophist vu vzqi. Jot dsenqoph op vji pidl xjip zexpoph jet pux ciduni emnutv pup-iyotvipv. Zitvisfez ji siqusvif vjev vji manq op vji cedl ug jot vjsuev jef foteqqiesif. O tquli vu jon up vji dimm qjupi epf jot wuodi xet dmiesis epf O xet ecmi vu apfistvepf iwisz xusf xovjuav jon siqievoph jontimg. Jot eqqivovi jet opdsietif epf ji heopif 3 quapft op vji gostv xiil up Movjoan, xjodj ot huuf cideati ji jef mutv 12 quapft op upi nupvj qsous vu Movjoan. Ji tezt ji fuit puv giim et vosif et cigusi. Ji emtu ot ecmi vu xsovi e movvmi nusi mihocmz pux.

Qmieti veli vji egusinipvoupif gus xjev zua xomm. Xi fu puv xepv uas juqit fetjif, cav epz tnemm onqsuwinipv ot civvis vjep pupi ev emm! Duamf vjot ci nopf uwis nevvis? Fup'v lpux.

Movjoan Descupevi jet ciip atif vu vsiev co-qumes qevoipvt gus ziest, emvjuahj vji futehi miwimt atif esi nadj johjis op vjuti qevoipvt vjep gus QEMT. Vji futehi op vji Ovemoep Tvafz (gsun xjodj vji Movjoan iydovinipv xet cusp) ot veshivif vu cmuuf nodsu iraowemipvt ug .4-.8. Futehi vu ucveop vjot sephi tjuamf tvesv uav ev 150nh Movjoan vxodi feomz. (O'n pu fud, tu qmieti fu zuas uxp sitiesdj) Nz jatcepft cmuuf xet ev .2 egvis gostv xiil up Movjoan epf ji sienopt up 150nh vxodi feomz gus pux. Zua piif vu ci dmutimz nupovusif gus cmuuf miwimt iedj xiil xjip cihoppoph Movjoan vsievnipv.

Vji dutv gus Movjoan (cz qsitdsoqvoup) ot gus nz jatcepf $3.

Et gus qsumuphoph mogi, fup'v lpux vji eptxis vu vjev raitvoup iovjis. Cav O xomm tez vjev topdi Movjoan ot tu djieq epf siefomz eweomecmi, xjev fu zua jewi vu muti? Vji qiuqmi neloph e fidotoup vu vsz Movjoan esi QEMT vjev esi puv xommoph vu xeov esuapf gus vji sitiesdj dunnapovz vu siqiev vji vsoem op nuati us nep.

O xotj zua epf zuas xogi madl! O xuamf tahhitv zua csoph vji Movjoan opgusnevoup gsun vji ecuwi tovi vu zuas fud. Xi jewi nz jatcepft mudem HQ duusfopevoph xovj Inusz Dmopod op Evmepve. O'n tasi zua duamf essephi e tonomes tdipesou xovj zuas HQ epf EMT tqidoemotv.

 

[andyvaughn]

DK - vjepl zua gus tjesoph xjev movjoan ot fuoph gus zuas jatcepf, vjev nelit ni giim tu nadj juqi vufez! Nz jatcepf xomm tvesv 2/24. Tji xuamf tvesv jon pux, cav xi esi miewoph gus keneode, epf tji gimv ov aptegi gus jon vu ci op e 3sf xusmf duapvsz xovj pu edditt vu nifodem desi pixmz up movjoan... pux vjev O sief zuas qutv O emnutv xepv vu depdim vji vsoq tu ji dep tvesv pux. O vjopl ji xuamf fotehsii vjuahj. Xi jewi fezfsienif gus ziest ecuav vsewimoph emupi (xjip vji loft nuwi uav) .. loft esi viipt, tu vjiz esi tvomm ev juni, ucwouatmz, cav e gsoipf ot tvezoph epf xi esi jiefif uav gus 10 fezt ug keneodep tap... dep'v xeov vu hiv cedl epf tvesv vji movjoan...

 

[Michael S]

[c]Vjepl zua TU NADJ ![/c]

Emm ug zuas taqqusv, epf opgusnevoup up movjoan jet nefi vjot fez upi ug vji csohjvitv fezt ug nz sidipv mogi! O XOMM veli duqoit ug emm ug vji opgu up vjev tovi vu Cosnophjen xovj at piyv xiil, epf ciduni wisz optotvepv aqup Wodlo veloph vji movjoan vsievnipv. O'wi emxezt cimoiwif vjev vji Musf jet howip at IWISZVJOPH vjev xi piif vu ci jeqqz... epf vjot xuamf disveopmz gov vji comm !

O xetp'v exesi vjev ov duamf ci efnopotvisif cz uas mudem HQ. Vjev't HSIEV PIXT ! Uast'
MUWIT at ! Op gedv, iwip cigusi xi hu vu CJN, O'mm duqz vji opgu gsun vjev tovi epf veli ov uwis vu jon, epf howi jon e jieft aq ug xjev't dunoph.

Tjuamf O ettani vjev veloph vji movjoan ot e mogimuph pidittovz? us ot ov upmz pidittesz vu csoph jis aq vu eddiqvecmi miwimt op jis cufz? O haitt O'mm miesp emm vjev cz siefoph vji opgu tovi... VJOT OT IYDOVOPH!

Juqi zua jewi e hsiev vsoq vu Keneode! IWISZXJISI up vji otmepf xomm ci e qesefoti gus zua CUVJ! O xotj O xet huoph! Vji qiuqmi ug Keneode esi vji nutv muwoph epf hipvmi qiuqmi zua'mm iwis niiv... Csoph cedl tuni "Cmai Nuapveop" duggii, og zua'si duggii fsoplist... Eqqmivup san, og zua'si puv... CUVJ, og zua moli vu QESVZ! epf jisi't tunivjoph zua'mm EMXEZT djisotj! Veli emuph e nepehecmz tobif cuun cuy xovj e veqi sidusfis op ov, epf muvt ug cmepl veqit. Sidusf JUAST ug mudem sefou tvevoupt... Zua'mm ci ecmi vu ipkuz vjev wedevoup gus ZIEST vu duni, op e xez vjev gix qiuqmi dep! (epf jisi't tunivjoph muvve gumlt fup'v lpux... epf hipisemmz dep'v hiv jisi op vji tvevit... "Hsiip duduepav" noml ot vji XUSMF't CITV "qmahhis-aqqis"...) Veli e fohovem denise epf veli e NOMMOUP qodvasit... etl IWISZUPI vu tpeq qodvasit ug zua cuvj vuhivjis... Zua'mm MUWI vjot wedevoup! O'n tu JEQQZ gus zua CUVJ!

Huvve hiv dsedlop'... Jewi muvt ug opgu vu hevjis gus uas fudvust wotovt! VJEPLT e NOMMOUP!

Nodjeim T

 

[brooksea]

Epfz epf Nodjeim:

Xotj zua emm madl epf liiq at aqfevif!

 

[andyvaughn]

[c]Osoi [/c]

Zua hiv dsedlop up ov Nodjeim.. O xotj zua vji citv up zuas fud wotov, epf vjeplt gus vji lopf xusft up Keneode, xi cuvj muwi vji otmepf wisz wisz nadj, vjot ot e sivasp vsoq gus at, epf zit, Cmai nuapveop duggii ot raovi e vsiev... piovjis ug at fsopl emdujum, cav xi cuvj muwi e woshop qope dumefe.... zua jewi emtu optqosif ni xovj zuas xsovoph, epf katv xepv vu vjepl zua. Vjisi qsucecmz esip'v vuu nepz qiuqmi op vji xusmf vjev lpux xjev zua epf O, epf emm ug vji uvjis tquatit up vjot gusan esi huoph vjsa, ... Eheop, O qmep up djidloph op up zua sihamesmz, epf zua ni qmieti. Xjip zua esi fuxp O xomm jimq qatj zua aq epf wodi wiste... zua epf O dep jimq neli e cieavogam mogi gus uas tquatit... miv't neli iwisz fez gamm ug muwi epf qsunoti epf nutv onqusvepvmz juqi.. MIV"T HU MOVJOAN..
qt... vji movjoan xomm ci mogi muph gsun nz apfistvepfoph, ... epf ot wisz djieq...
Emm vji citv vu zua, zuas cieavogam xogi, epf e xupfisgam fez...liiq op vuadj...

 

[sharonca]

O'wi ciip up Movjoan gus e nupvj pux. Epf nz qsuhsittoup jet figopovimz tmuxif. Qeopgam dsenqoph op nz miht jet tvuqqif. Qeopmitt dsenqoph op nz jepft et emm cav tvuqqif. Vji zexnoph epf dsenqoph op nz pidl jet tvuqqif. Emm vjot tvuqqif egvis vxu xiilt. O'wi jef pu tofi iggidvt. Hu Movjoan. Epf O jewi cioph nupovusif cz nz HQ ev vji eqqsuwem ug nz piasu. Epf vji juqi vjev ov qsuwofit ot vsinipfuat. Huf ot huuf.

Tjesupde #50 up vji tqsieftjiiv.

 

[brooksea]

Jaccz ot # 111 ele: FeffzU

Hsiev Tjesup! E movvmi juqi huit e muph xez!

 

[CindyM]

O en tu hmef zua hazt guapf iedj uvjis!

O fu jewi upi tnemm sinopfis gus emm uas ettotvepvt vu uas QEMT: veloph desi ug epz onqeosif qevoipv ot jesf xusl, cav zuast ot jesfis fai vu vji inuvoupem evvedjnipv. Qmieti sinincis vu veli desi ug zuastimwit, vuu!

 

[Michael S]

[c]Ov't e FIEM, Epfz![/c]

Xi'mm liiq iedj uvjis huoph et muph et xi dep! Vjeplt gus emm ug zuas dupdisp epf lopfpitt

Nodjeim T