karzy81
Active member
- Joined
- Nov 7, 2017
- Messages
- 52
- Reason
- Loved one DX
- Diagnosis
- 03/2018
- Country
- CA
- State
- ON
- City
- Thornhill
My dad was diagnosed in March 2018. He walked out of the office, slowly, but on his own. September 2018 he was still walking with a walker. Breathing was great. Fast forward to May, he is in a wheelchair, his breathing is under 60 and he has very little movement in his arms.
He can still eat but gets tired when he does and is constantly spitting up bile (what is that about by the way).
My question, or I should say comment, because there is never any answers with this disease, is that they say progression stays it’s course and continues progressing as it has been progressing. If this is the case then do we have no hope of a plateau? I hear stories of people progressing fast and then all of a sudden hitting a plateau and remaining the same for a while. I don’t know what I’m even asking here, just having a rough night and wanted to write here.
He can still eat but gets tired when he does and is constantly spitting up bile (what is that about by the way).
My question, or I should say comment, because there is never any answers with this disease, is that they say progression stays it’s course and continues progressing as it has been progressing. If this is the case then do we have no hope of a plateau? I hear stories of people progressing fast and then all of a sudden hitting a plateau and remaining the same for a while. I don’t know what I’m even asking here, just having a rough night and wanted to write here.