Winelover49
Member
- Joined
- Jan 24, 2020
- Messages
- 14
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
- City
- Porter
About four months ago I started twitching in multiple areas; thighs, then calves and then random in arms and thorax but not tongue.
PCP did minimal blood work, all normal except slight increase in CK to 293.
Referred to neuro who did a clinical and said Babinski, reflexes, strength and muscle tone were all normal. I asked her twice if I was presenting with ALS and she said no. She said ALS doesn't present this way but she wanted me to have an EMG and nerve study to find cause of twitching.
Second neuro did the EMG and nerve study and at followup yesterday she stated that there was some nerve connectivity damage on both inside and outside of several nerves. She did another clinical and everything OK but she detected a bit of weakness in right shoulder
She has ordered MRI of low, middle and upper back and brain and a lumbar puncture along with about 50 different blood tests.
For insurance purposes she diagnosed idiopathic progressive polyneuropathy.
She said that there are a number of things that could cause my symptoms and she included ALS as one of them.
I asked her after four months of twitching, starting in multiple locations shouldn't I be having some serious symptoms and shouldn't my clinical really show them to her through Babinski sign, brisk reflexes etc. .
She said ALS is variable, which means it's variable with individuals.
Does this appear that she is looking at ALS and merely beginning the elimination process to confirm?
Thank you for any thoughts and for your time.
Regards
PCP did minimal blood work, all normal except slight increase in CK to 293.
Referred to neuro who did a clinical and said Babinski, reflexes, strength and muscle tone were all normal. I asked her twice if I was presenting with ALS and she said no. She said ALS doesn't present this way but she wanted me to have an EMG and nerve study to find cause of twitching.
Second neuro did the EMG and nerve study and at followup yesterday she stated that there was some nerve connectivity damage on both inside and outside of several nerves. She did another clinical and everything OK but she detected a bit of weakness in right shoulder
She has ordered MRI of low, middle and upper back and brain and a lumbar puncture along with about 50 different blood tests.
For insurance purposes she diagnosed idiopathic progressive polyneuropathy.
She said that there are a number of things that could cause my symptoms and she included ALS as one of them.
I asked her after four months of twitching, starting in multiple locations shouldn't I be having some serious symptoms and shouldn't my clinical really show them to her through Babinski sign, brisk reflexes etc. .
She said ALS is variable, which means it's variable with individuals.
Does this appear that she is looking at ALS and merely beginning the elimination process to confirm?
Thank you for any thoughts and for your time.
Regards