- Jul 22, 2016
- Loved one DX
This is my first post. My mom was diagnosed with ALS in March of 2015. It is difficult for me to see her progress as we live 600 miles apart. She told me before I got there to be prepared as she had really declined. But when I saw her I did not think her "decline" was as bad as she made it out to be. She HAS lost more weight. At her last ALS clinic (a few days before I got there) she was told that it was probably time for a feeding tube on a bolus status only. She has NO problems with swallowing or breathing. I asked her why she does not eat and she says "I just don't feel like it." She also refuses to do other things that are suppose to help her. Like, wearing support socks and wearing her shoes and braces. She flat out refuses to do the things that will help her. Is this normal? Is she giving up?