Lory
Member
- Joined
- Aug 27, 2013
- Messages
- 13
- Reason
- Loved one DX
- Country
- US
- State
- MD
- City
- Baltimore
Hi everyone. I have been lurking here for the last few months and have gotten so much information from reading everyone's posts. My father was diagnoses with limb-onset ALS in March. He has fasiculations in his legs but is still able to walk completely independently. He has limited use of of his arms. His voice and swallowing are good currently but he is wondering if it may be in the beginning stages of being impacted.
My parents live in ohio and I am in Maryland. I have invited them to come and live with me as his symptoms progress, if and when it gets to be difficult for my mom to care for him on her own, but they are adamant they want to stay in ohio. The house they're in is already handicap accessible, but I am just really worried about what will happen down the line. My mom will be basically be his full-time caregiver.
I would love to hear any opinions/stories from people who are able to have their loved one at home, when they are the primary caregiver. I just don't want my father to go in a nursing home, as he is only 67. I plan on flying out as much as I can to help, but am afraid my mom will be doing the 24/7 work. Is this even possible, or do most people have to go into a nursing facility when they become wheelchair-bound?
Thanks so much in advance!
My parents live in ohio and I am in Maryland. I have invited them to come and live with me as his symptoms progress, if and when it gets to be difficult for my mom to care for him on her own, but they are adamant they want to stay in ohio. The house they're in is already handicap accessible, but I am just really worried about what will happen down the line. My mom will be basically be his full-time caregiver.
I would love to hear any opinions/stories from people who are able to have their loved one at home, when they are the primary caregiver. I just don't want my father to go in a nursing home, as he is only 67. I plan on flying out as much as I can to help, but am afraid my mom will be doing the 24/7 work. Is this even possible, or do most people have to go into a nursing facility when they become wheelchair-bound?
Thanks so much in advance!