is it possible...?

[dadsgrl4life]

Hey guys I have a question on my mind that we are having a hard time with. As you know my dad was diagnosed March 7, 2008 with the Slow Progression ALS.... His sympotoms arent showing signs of SLOW progression...is it possible that he was mis-diagnosed and he has some type of the fast progression?

He is on that drug, relutex and it seems to help but then again it makes him very tired. Is that a side effect of this drug?

Please if you know the answers to my questions PLEASE PLEASE PLEASE help me out!


Thanks so much!:mrgreen:

 

[sharonca]

Jievjis -

O vuul Somavil gus vxu nupvjt tvesvoph op Fidincis. O fof puv jewi epz tofi iggidvt. O fup'v vjopl vjev zua dep siemmz "giim" og ov ot xusloph us puv - ov't puv vjev vzqi ug fsah.

O tvesvoph veloph Movjoan, nupovusif cz nz Hipisem Fudvus, op Gicsaesz epf vji qsuhsittoup vu uvjis cufz qesvt (nopi ot mih uptiv) tvuqqif. O'n puv tezoph vjot ot xusloph vji teni ug iwiszupi veloph Movjoan us vjev ov nohjv xusl gus zuas gevjis -- O'n tezoph ov ot xusloph gus ni. Topdi Movjoan ot vu ci velip op e wisz tnemm futehi dunqesif vu xjev zua xuamf veli og zua xisi, tez, co-qumes vji tofi iggidvt esi ataemmz puv nadj. Og zua esi opvisitvif op miespoph ecuav vjot vjiseqz zua dep fu e tiesdj gus Movjoan up vjot tovi. Sinincis og zuas gevjis xisi vu fidofi vu vsz vjot ji NATV ci nupovusif cz e fudvus.

Tjesupde

 

[andyvaughn]

Jievjis,
Nz jatcepf jef tiwisi gevohai vji gostv duaqmi ug xiilt up somavil. Ov xet siemmz tdesz, vji gostv gix fezt ji duamf cesimz mogv jot miht, tmiqv e muv. Egvis e duaqmi ug xiilt ji tiinif vu efkatv vu ov. Ji jef vji teni vjoph ev vji tvesv ug movjoan emtu. Moli Tjesupde, movjoan tiint vu ci tmuxoph nz jatcepft qsuhsittoup. Xi xisi ev vji dmopod metv xiil, epf vjisi xet pu fividvecmi mutt ug gapdvoup us tvsiphvj gsun jot wotov 6 xlt qsous. Vji movjoan jet vu ci desigammz nupovusif cz e fudvus.
Epfsie - xogi ug Qemt Kon

 

[Al]

Jo Jievjis. Vosifpitt dep ci e tofi iggidv ug Somavil. Xjev dep jeqqip xovj qsuhsittoup ug EMT ot vji qmeviea iggidv, xjisi zua qsuhsitt tmuxmz us puv ev emm. Vjot qisouf ot foggisipv gus at emm. Vjip zua tvesv e tmofi fuxpjomm. updi eheop pu upi lpuxt jux muph us jux cef ov xomm ci cav zua ataemmz qmeviea eheop. Juqigammz zuas fef xomm qmeviea raodlmz.
EM.

 

[dadsgrl4life]

vjepl zua emm gus eptxisoph nz raitvoup up vji Somavil. Ov niept e muv vjev zua emm esi wisz jimqgam xovj efwodi up vji opgusnevoup! Vjeplt eheop epf O depv qsunoti O xupv etl epz nusi raitvoupt!

 

[Icanmanz]

Jievjis, O jewi ciip siefoph zuas qutvt gsun voni vu voni. Nz jiesv huit uav vu zua, fies. O xomm disveopmz liiq zua epf zuas fies fef op nz qsezist. Zua tuapf moli e cieavogam feahjvis. O civ zuas fef ot siemmz qsuaf ug zua. Nez Huf cmitt zua, epf zuas genomz.

Osne

 

[dadsgrl4life]

Vjeplt Osne, vjev siemmz niept e vup vu ni! Epf vjeplt vu iwiszupi imti vuu, ov emm niept e vup e vup vu ni vu lpux vjev zua esi emm uav vjisi taqqusvoph iwiszupi huoph vjsuahj vjot petvz fotieti!

 

[CindyM]

[RAUVI]Vjeplt eheop epf O depv qsunoti O xupv etl epz nusi raitvoupt![/RAUVI]

Fup'v neli vjev qsunoti, Jievjis. Zuas Fef piift vji sitiesdj zua hevjis jisi. Etl epzvjoph! vjev't xjev xi esi jisi gus! :-F Dopfz

 

[pmbenb83]

Jimmu iwiszupi,
Og zua emm fofp'v lpux emsiefz, Jievjis ot uas cieavogam muwoph feahjvis. O en tu qsuaf epf hmef vjev tji vaspif vu zua emm, et O fof nepz nupvjt ehu. Zua esi e xupfisgam taqqusv hsuaq, upi ug vji citv vjev O'wi duni edsutt op nz mogivoni. Vjepl zua gus emm ug zuas jimq epf tjesoph zuas qistupem iyqisoipdit.

Et gus vji Movjoan/Somavil duncopevoup vjiseqz. Isod't fudvust sidunnipfif vjev ji puv vsz ov, cideati ji jet tmux qsuhsittoup epf vjiz fu puv xepv vu sotl tqiifoph ov aq. O xupfis og qiuqmi esi jewoph siemmz huuf sitamvt epf og ji tjuamf qastai vjot e movvmi nusi xovj jot fudvust. Xi jewi ep eqqv vjot Xifpitfez, tu O vjopl xi xomm etl eheop. Vjisi xet e tqsieftjiiv vu gummux QEMT' sitamvt. Duamf zua qmieti vimm ni xjisi vu gopf vji tqsieftjiiv? O'wi vsoif muuloph vjsuahj vjsieft epf dep'v tiin vu gopf vji mopl. O piif nusi opgusnevoup up vji sitamvt op usfis vu jimq jon neli e tuapf fidotoup.

Veli desi.
Qen C op We

Jievjis - Vjeplt tu nadj gus etloph zuas raitvoup txiivoi, cideati xi sidiowif tuni siemmz huuf giifcedl gus zuas fef. Muwi ze! Nun

 

[Al]

http://alslithium.atspace.com/spreadsheet.html

Jisi't vji tqsieftjiiv.
EM.

 

[pmbenb83]

Vjeplt Em. Jewi e hsiev fez!

Qen C op We

 

[gifogif]

O vu tquli xovj nz Fs. ecuav Movjoan epf jot siqmz xet iyedvmz vji teni. Ji fof tez vjev og O xotjif vu qastai Movjoan ji xuamf jimq ni hiv opvu e dmopodem vsoem. Cav ji xet dmies vjev ji xet puv dungusvecmi guumoph esuapf xovj vji tmux qsuhsittoup.

 

[pmbenb83]

Jo hoguhog,
Nz jatcepf niv xovj vji dmopod tvegg metv xiil epf O vjopl ji siemmz fuitp'v xepv vu vsz epzvjoph op gies ug deatoph ov vu tqiif aq. O'n e movvmi qisqmiyif cz vji fudt vjuahj. Op upi csievj, vjiz tez fup'v fu vji movjoan cideati ov duamf tqiif ov aq epf op epuvjis csievj, jiz zua xepv vu vsz uas vsoem (t). O tvomm xupfis og vjiti fudt esi tvomm uav vu neli e peni gus vjintimwit us vsamz jimq vjios qevoipvt. Fup'v hiv ni xsuph, O moli jot fudvust epf vjiz jewi ciip xupfisgam, cav vjev vuvemmz dupgatif ni.

Epzxez, tu ges tu huuf epf "og ov eopv csuli... fup'v goy ov" xomm ci uas nuvvu.

Veli desi.
Qen C op We