Thanks for letting me know. Can you tell me a little bit about the Trilogy machine if you don't mind. What kind of things can your wife still do. Can she speak? Is she mobile? What about eating? I assume it has to be through a peg. In other words, is the Trilogy machine like a face mask that does not allow one to speak and such?Just a Guy
Just as a FYI. My wife has used the Trilogy 100 for almost two years now. It has a six hour battery and is realitivy light weight. It has allowed her great mobility. Just like your father, my wife chose not to have a vent and we where informed the the Trilogy might extend her life. Currently she is 100% dependent on her Trilogy to breath and there is no doubt it she is still with us because of this machine.
The down side is that the Trilogy, however nice, is not a cure for ALS and it has continued to progress. When she decided not to get a vent I thought we would not have to worry about having a discussion about when to take her off of some machine, but since the Trilogy is working so well, we had to talk about that just the other day.
Best wishes to you and your father. He is fortunate to have you by his side
From what I read, the DPS seems like it would allow the patient to breathe without any sort invasion through the trachea. Does this mean the patient will be able to move around and speak and such.A DPS also known as a Diaphram Pacing System but this is still in the trial phase from what I understand in regard to ALS.
Here's a link regarding the DPS:From what I read, the DPS seems like it would allow the patient to breathe without any sort invasion through the trachea. Does this mean the patient will be able to move around and speak and such.
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