Peter1992
New member
- Joined
- Feb 27, 2022
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SK
- State
- SK
- City
- Žilina 8
Hello everyone and thank you for your opinion
Man
Age 29 years
Europe
Around the beginning of December 2021, after waking up, I began to feel weakness in my hands, which disappeared after about 5 minutes.
Subsequently, about two weeks later, I began to feel jerks (fasciculations) first in my legs then my hands and then all over my body, back, abdomen, arms, legs, head, face all during the week.
About a week later, I woke up with the feeling that my speech had worsened when I read the text, but when I had to talk so spontaneously, I was wrong in my own words.
Man
Age 29 years
Europe
Around the beginning of December 2021, after waking up, I began to feel weakness in my hands, which disappeared after about 5 minutes.
Subsequently, about two weeks later, I began to feel jerks (fasciculations) first in my legs then my hands and then all over my body, back, abdomen, arms, legs, head, face all during the week.
About a week later, I woke up with the feeling that my speech had worsened when I read the text, but when I had to talk so spontaneously, I was wrong in my own words.
When I know what I'm going to talk about, my speech is normal, but if I just have something to talk about, I'm wrong as I mentioned. In the mirror I see the hips of my tongue shaking when he is calm. Two neurologists have said that my tongue is free of fasciculations, but I can still see how my hips are shaking.
When I ask them then, they don't feel like my speech is getting worse or that I have a different voice.
But I perceive that it is different than before.
Furthermore, while typing on the phone, I began to feel the weakness of the little one on the right hand, followed by the wrist, which weakness will pass to pain after a while.
When I stop writing and the hand rests the pain will go away.
When cooking or mixing food, I feel the same pain for a while.
I turn on the button, tie the strings and lift even heavier loads.
But I feel my hands promising. I have a feeling that I sometimes have cramps, thighs of both legs, forearms of both hands, I do not know if they are cramps or not just it is a withdrawn feeling too?
Other symptoms I've noticed at this time are that my balance has deteriorated and I feel a weakness in my right leg, where I've been feeling cold lately.
Moments like toes and heels are fine, I can walk both on tiptoe and heel.
In the last two weeks, I have been eating a healthy diet and taking magnesium supplements, and my fasciculations have eased quite significantly, but I still feel them.
It's such tingling. Maybe bubbling.
I often have a tingling toe on my left foot, this limb seems to me the only one right now.
My sleep has been bad for the last two months until the last few weeks when I take melatonin, so I sleep for eight hours.
I lost approximately 7 kg in 3 months.
When I write this text and it still happens to me the last time I have my hands bent, I will both endure me.
When I wake up, I feel hand pain.
It will pass after a while.
Swallowing big sust seems to me to be easier than small.
I can swallow water normally.
I have dry mouth in the morning but during the day I feel more saliva forming.
Especially after smoking.
I apologize for my grammar with the text but how much I am with Europe so my English is not good and I used the Google translation.
Questions:
1: Is it possible for ALS that my symptoms throughout the body are so pronounced within two months and have spread throughout the body?
2: It is with ALS that patients feel cold in the limbs, I feel it mainly in the right leg.
3: It is normal for ALS that fasculations start all over my body, as I wrote, I have them everywhere.
4: Do patients have a problem with speech while reading?
5: Are ALS cramps painful or not?
6: Of course, I am interested in a comprehensive view of my symptoms regarding ALS.
Thank you very much
Peter
Man
Age 29 years
Europe
Around the beginning of December 2021, after waking up, I began to feel weakness in my hands, which disappeared after about 5 minutes.
Subsequently, about two weeks later, I began to feel jerks (fasciculations) first in my legs then my hands and then all over my body, back, abdomen, arms, legs, head, face all during the week.
About a week later, I woke up with the feeling that my speech had worsened when I read the text, but when I had to talk so spontaneously, I was wrong in my own words.
Man
Age 29 years
Europe
Around the beginning of December 2021, after waking up, I began to feel weakness in my hands, which disappeared after about 5 minutes.
Subsequently, about two weeks later, I began to feel jerks (fasciculations) first in my legs then my hands and then all over my body, back, abdomen, arms, legs, head, face all during the week.
About a week later, I woke up with the feeling that my speech had worsened when I read the text, but when I had to talk so spontaneously, I was wrong in my own words.
When I know what I'm going to talk about, my speech is normal, but if I just have something to talk about, I'm wrong as I mentioned. In the mirror I see the hips of my tongue shaking when he is calm. Two neurologists have said that my tongue is free of fasciculations, but I can still see how my hips are shaking.
When I ask them then, they don't feel like my speech is getting worse or that I have a different voice.
But I perceive that it is different than before.
Furthermore, while typing on the phone, I began to feel the weakness of the little one on the right hand, followed by the wrist, which weakness will pass to pain after a while.
When I stop writing and the hand rests the pain will go away.
When cooking or mixing food, I feel the same pain for a while.
I turn on the button, tie the strings and lift even heavier loads.
But I feel my hands promising. I have a feeling that I sometimes have cramps, thighs of both legs, forearms of both hands, I do not know if they are cramps or not just it is a withdrawn feeling too?
Other symptoms I've noticed at this time are that my balance has deteriorated and I feel a weakness in my right leg, where I've been feeling cold lately.
Moments like toes and heels are fine, I can walk both on tiptoe and heel.
In the last two weeks, I have been eating a healthy diet and taking magnesium supplements, and my fasciculations have eased quite significantly, but I still feel them.
It's such tingling. Maybe bubbling.
I often have a tingling toe on my left foot, this limb seems to me the only one right now.
My sleep has been bad for the last two months until the last few weeks when I take melatonin, so I sleep for eight hours.
I lost approximately 7 kg in 3 months.
When I write this text and it still happens to me the last time I have my hands bent, I will both endure me.
When I wake up, I feel hand pain.
It will pass after a while.
Swallowing big sust seems to me to be easier than small.
I can swallow water normally.
I have dry mouth in the morning but during the day I feel more saliva forming.
Especially after smoking.
I apologize for my grammar with the text but how much I am with Europe so my English is not good and I used the Google translation.
Questions:
1: Is it possible for ALS that my symptoms throughout the body are so pronounced within two months and have spread throughout the body?
2: It is with ALS that patients feel cold in the limbs, I feel it mainly in the right leg.
3: It is normal for ALS that fasculations start all over my body, as I wrote, I have them everywhere.
4: Do patients have a problem with speech while reading?
5: Are ALS cramps painful or not?
6: Of course, I am interested in a comprehensive view of my symptoms regarding ALS.
Thank you very much
Peter