I've not heard of him, but if he is one of those "experts " that claims they can cure ALS, run fast and run far. I had a dear friend who was duped into getting treatment to cure his ALS. He spent 250k, was never cured, and spent the remaining time he had left on this earth trapped in his house, without all the equipment he needed, simply because they had no more money to get the things that he needed to keep him comfortable. It was truly sad...
The point is, please be wary of anyone who claims they can treat or cure diseases that have no treatment or cure.