I help care for my mother at times and she cries much complaining that she is in so much pain. She is at the point now where she has no control over any appendage below her neck. She has 40% lung capacity left and has now started experiencing problems swallowing. She will begin taking morphine patches soon to help with the pain. Does anyone know how far along the als ladder she seem to be? She constantly is asking for me/someone to move her arms/legs/hands/feet to different positions every 5-10 minuets. Is this normal? I'm feeling overwhelmed. Thanks for you help/advice/support!