SpeedyMarie
Active member
- Joined
- May 24, 2019
- Messages
- 38
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- TX
- City
- Houston
Talking with my friend an older man R. His partner my friend Mark an artist whom passed last year. Both survived the AIDS epidemic in the 80s. My friend has AIDS, Hep C etc. When he lost Mark my first thought was him. So I adopted him, we all need people to care. We were chatting today he’s had more loss than I could imagine. I introduced him to Steven Levine’s site ( grief work) he took my diagnosis hard. I’m not dead yet hope to have more time to boot.
So chatting with him about my daughter wedding. He asked me if was hard because of the ALS. I told him no I’ve been working on that it’s just a part of me I have been accepting this is a joyful thing my symptoms are okay at this time. I want to celebrate my daughter’s time. He had a hard time with that but you have ALS, yes I’m dying but we all are I just know it’s closer. He told me that he would have died 27 years ago from AIDS if he thought like me lol
So chatting with him about my daughter wedding. He asked me if was hard because of the ALS. I told him no I’ve been working on that it’s just a part of me I have been accepting this is a joyful thing my symptoms are okay at this time. I want to celebrate my daughter’s time. He had a hard time with that but you have ALS, yes I’m dying but we all are I just know it’s closer. He told me that he would have died 27 years ago from AIDS if he thought like me lol