comfortable with ALS
Distinguished member
- Joined
- Sep 24, 2007
- Messages
- 111
- Reason
- Other
- Diagnosis
- n/a
- Country
- US
- State
- mi
- City
- st.clair shores
Good evening,
I just wanted to say hello to everyone. I am so excited to hear about the FDA approving IPLEX, I am sad though you had to be signed up by March 6th. They came out with the information Mar 10, so the rest of us will be throws into a lottery which is not good! It is rather very disturbing to my friends family and for everyone else out there who is suffering with this disease. I think we need to get on the FDA about this. Lets get on top of this. Thanks for taking the time to read my post. Jenny Boyd
I just wanted to say hello to everyone. I am so excited to hear about the FDA approving IPLEX, I am sad though you had to be signed up by March 6th. They came out with the information Mar 10, so the rest of us will be throws into a lottery which is not good! It is rather very disturbing to my friends family and for everyone else out there who is suffering with this disease. I think we need to get on the FDA about this. Lets get on top of this. Thanks for taking the time to read my post. Jenny Boyd