DaleJoni
New member
- Joined
- Oct 25, 2020
- Messages
- 6
- Reason
- Lost a loved one
- Diagnosis
- 08/2019
- Country
- US
- State
- IL
- City
- Homer Glen
Hello everyone. I’ve been using this site for quite some time now and have found it wonderfully helpful. I’m the full time caregiver for my wife Joni. Joni has bulbar ALS along with FTD (Frontotemporal Dementia). Her symptoms started summer 2018 and was diagnosed summer 2019. Today she can’t speak or swallow at all. Her arms and hands have lost a lot of function but she can still use them below her shoulders and can still stand and walk.
The dementia has really affected her ability to interact. We have the “Speech Assist” text to speech App on her IPAD but she really doesn’t use it much unless I really can’t figure out what she wants and make her use it (her handwriting is pretty much illegible). She does however love to use her IPAD all day playing solitaire or watching stuff on Facebook, YouTube, etc. As she is losing function now in her hands & arms I am trying to think about how she can still use her IPAD going forward.
I’m beginning to research this now but thought I would ask if anyone has experience using head or eye tracking with an IPAD Pro. I do have an IPAD Pro that I’m experimenting with but haven’t found it very intuitive. I don’t think she could learn anything too complicated or difficult to master due to the FTD. Our clinic speech therapist pretty much has just steered us toward the low tech alphabet boards and didn’t know much about the IPAD Pro capability. Those would work for basic communication but I hate to see her lose use of her IPAD that she enjoys.
Dale
The dementia has really affected her ability to interact. We have the “Speech Assist” text to speech App on her IPAD but she really doesn’t use it much unless I really can’t figure out what she wants and make her use it (her handwriting is pretty much illegible). She does however love to use her IPAD all day playing solitaire or watching stuff on Facebook, YouTube, etc. As she is losing function now in her hands & arms I am trying to think about how she can still use her IPAD going forward.
I’m beginning to research this now but thought I would ask if anyone has experience using head or eye tracking with an IPAD Pro. I do have an IPAD Pro that I’m experimenting with but haven’t found it very intuitive. I don’t think she could learn anything too complicated or difficult to master due to the FTD. Our clinic speech therapist pretty much has just steered us toward the low tech alphabet boards and didn’t know much about the IPAD Pro capability. Those would work for basic communication but I hate to see her lose use of her IPAD that she enjoys.
Dale