blair1960
New member
- Joined
- Feb 27, 2020
- Messages
- 1
- Reason
- PALS
- Diagnosis
- 01/2020
- Country
- US
- State
- NC
- City
- x
Hello
I see a lot of good informative content and kind people on here. Thank you all for that.
June 2019 I was fine. Able to walk around, mow the grass, all the things you are supposed to be able to do at 60 years old.
October 2019 I started feeling weaker in the back and legs. Went to primary care and through orthopedics, PT and finally neurology. A full suite of MRIs, EMGs, blood tests and a spinal tap later and I'm diagnosed with ALS in January 2020. Went to Duke ALS clinic for a second opinion. The thing that convinced the doctors was the high level of fasciculations all over my body.
Now its June 2020 and I can hardly walk and have fallen softly 4 times now. I fear uneven surfaces and turning in a different direction. My upper body is starting to fail too. Communications, breathing and eating are still fine, but I do shake noticeably now.
On the positive side, I am still working full time.
I am not looking forward to being any more dependent on my wonderful wife. This is just so unfair for all of us (and our caregivers)
No questions for now but you may hear from me.
Blair (Raleigh NC)
I see a lot of good informative content and kind people on here. Thank you all for that.
June 2019 I was fine. Able to walk around, mow the grass, all the things you are supposed to be able to do at 60 years old.
October 2019 I started feeling weaker in the back and legs. Went to primary care and through orthopedics, PT and finally neurology. A full suite of MRIs, EMGs, blood tests and a spinal tap later and I'm diagnosed with ALS in January 2020. Went to Duke ALS clinic for a second opinion. The thing that convinced the doctors was the high level of fasciculations all over my body.
Now its June 2020 and I can hardly walk and have fallen softly 4 times now. I fear uneven surfaces and turning in a different direction. My upper body is starting to fail too. Communications, breathing and eating are still fine, but I do shake noticeably now.
On the positive side, I am still working full time.
I am not looking forward to being any more dependent on my wonderful wife. This is just so unfair for all of us (and our caregivers)
No questions for now but you may hear from me.
Blair (Raleigh NC)