Hi, Everyone. We are actually 2 of us - Trina and Carla Sue - therefore
"Trinasue". Trina has ALS, has already lost the ability to swallow and talk,
and has a stomach tube for feeding. She has been blind for close to 40 years.
The Sue half of this duo has been a friend of Trina (and her husband, Lou) for
over 30 years. I do not have ALS, but since I have 2 friends who DO, here I am!
Trina communicates by typing on a computer keyboard and we read her comments on
the monitor. We chat online. I use the voice function on Yahoo and Trina can
hear me. She replies by typing back to me. We are hoping that involvement with
this Forum online will open up her world - which of course has become limited
with the progression of ALS - and will enable her to both give and receive
support.
So hello from Tallahassee, Florida, to all of you. We are GLAD to be here with you in this forum.
"Trinasue". Trina has ALS, has already lost the ability to swallow and talk,
and has a stomach tube for feeding. She has been blind for close to 40 years.
The Sue half of this duo has been a friend of Trina (and her husband, Lou) for
over 30 years. I do not have ALS, but since I have 2 friends who DO, here I am!
Trina communicates by typing on a computer keyboard and we read her comments on
the monitor. We chat online. I use the voice function on Yahoo and Trina can
hear me. She replies by typing back to me. We are hoping that involvement with
this Forum online will open up her world - which of course has become limited
with the progression of ALS - and will enable her to both give and receive
support.
So hello from Tallahassee, Florida, to all of you. We are GLAD to be here with you in this forum.