DesertGypsy
New member
- Joined
- Jun 17, 2012
- Messages
- 6
- Reason
- DX UMND/PLS
- Country
- US
- State
- Ca
- City
- Los Angeles
Hello everybody,
My mom has recently received a preliminary diagnosis of PLS, but it's only been three years, and the neuros say they can't be sure it's not ALS until another year has passed. Mom's trouble began with a tingling in her toes on her left foot, and has progressed to the point where she has little use of her left leg. Her last EMG showed denervation in her other leg as well, and the beginnings of it in her left arm. She went from manually compensating for foot drop, to using a cane, then a walker, and now (reluctantly) a wheelchair. She's seen so many doctors and had so many tests that I've lost count. The first two neuros said it might be ALS, but it was too early to tell and, frankly, they didn't have enough experience to know either way. She's taking baclofen now, but takes far less than she's supposed to because it makes her woozy. She's pretty depressed and angry. It's very overwhelming for all of us to be where we are.
I guess that's a pretty typical introduction around here, isn't it? I hope to find some comfort with others going to rough the same or similar experiences, though it's a lousy way to make friends.
DesertGypsy
My mom has recently received a preliminary diagnosis of PLS, but it's only been three years, and the neuros say they can't be sure it's not ALS until another year has passed. Mom's trouble began with a tingling in her toes on her left foot, and has progressed to the point where she has little use of her left leg. Her last EMG showed denervation in her other leg as well, and the beginnings of it in her left arm. She went from manually compensating for foot drop, to using a cane, then a walker, and now (reluctantly) a wheelchair. She's seen so many doctors and had so many tests that I've lost count. The first two neuros said it might be ALS, but it was too early to tell and, frankly, they didn't have enough experience to know either way. She's taking baclofen now, but takes far less than she's supposed to because it makes her woozy. She's pretty depressed and angry. It's very overwhelming for all of us to be where we are.
I guess that's a pretty typical introduction around here, isn't it? I hope to find some comfort with others going to rough the same or similar experiences, though it's a lousy way to make friends.
DesertGypsy
