Introducing Barneydog

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barneydog

New member
Joined
Jun 26, 2016
Messages
3
Reason
Friend was DX
Country
ca
State
CA
City
yorba linda
I just want to ask for help. my friend was just diagosed. talked to her today & she was crying. I have no clue what to say to comfort her. Help!
 

Atsugi

Moderator emeritus
Joined
Jan 11, 2011
Messages
5,187
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
FL
City
Orlando
Welcome Barneydog. I'm sorry to read about your friend's diagnosis. If she has been diagnosed with ALS, she should get a second opinion from a neurologist who is an ALS specialist. The disease is fatal and there is no cure.

There is not a lot to say to comfort someone when they've just been told they're going to die. Just be there for her and listen, so she can vent.

I can't stress this enough: She should get a second opinion from a neurologist who specializes in ALS.
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,583
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
First, You are the kind of friend I wish I had.....someone who cares enough to find a forum and asks questions on how you can help.

Do make sure she gets a second opinion with an ALS neuro.

Sometimes, you just have to listen, be there, and let her know you aren't going to go anywhere.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,931
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
City
Seattle
In the LA area, centers for a second opinion and ongoing care include UCLA, Cedars, USC and Kaiser.
 
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