suchahoward
Member
- Joined
- Mar 25, 2019
- Messages
- 20
- Reason
- PALS
- Diagnosis
- 07/2018
- Country
- US
- State
- WA
- City
- Bellingham
I started drinking diet tonic water and vodka after being diagnosed. I still drink beer, take riluzole, radicava, and baclofen. The biggest help for my cramps is yellow mustard. Two to four tablespoons out of a jar per day. The neuro will let you know if your liver enzymes go out of wack and need to cut back. Drink up! Screw ALS!
Chuck
Thanks Chuck! Did/do you play dobro?! I tried learning it after I could no longer form chords on the fretboard with my left hand, but i’d never played open tunings before, and only ever faked fingerpicking before. Still, while I could no longer perform, I have been able to attend a weekly bluegrass/country/OldTime acoustic jam that I’ve been going to for years, everyone knows what I’m going through, and so they’re very patient and forgiving with my fumbling around. All that said, it’s getting hard and harder to hold onto the slide and harder to do what I need to do with the fingers of my right hand.
I’ll be thinking of you at the jam Friday. Cheers!