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Atsugi

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I received this today:


Dear Michael,
Thanks to your efforts and those of thousands of other ALS advocates, Congress has taken significant action during the past month to support the fight against ALS. The updates below reflect the power of your advocacy and demonstrate that the ALS community is producing results on Capitol Hill!



National ALS Registry

  • The House Appropriations Committee approved $10 million to continue funding for the National ALS Registry! This is a 28% increase over last year!
ALS Research Program at the Department of Defense

  • The Senate Appropriations Committee approved $10 million dollars for the ALSRP, a 33% increase over last year!
21st Century Cures Act & Dormant Therapies

  • The House of Representatives approved H.R. 6, the 21st Century Cures Act, sweeping legislation that would help to advance ALS research and accelerate the discovery and development of new treatments. Among the many key provisions, the bill increases funding for the National Institutes of Health (the single largest source of ALS research funding) by $8.75 billion and also increases funding for the FDA by $550 million, providing the agency with additional resources to help improve and expedite the drug development and approval process. The bill now heads to the Senate where The Association is working to add the Dormant Therapies Act to the Senate version of 21st Century Cures.
Ensuring Access to Speech Generating Devices (SGDs)

  • And to cap off the great progress of the past 30 days, just this week the House passed the Steve Gleason Act to help ensure access to SGDs. The bill is on its way to the President who is expected to sign it into law!
We still have more work to do, but, together, we have made significant progress! You are making a difference so please keep an eye out for our updates and action alerts as the legislative process moves forward.
Thank you to the entire ALS community!
The Public Policy Team

 

GregK

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Cool! Thanks, Mike.

Btw, does anyone know what the DoD effort entails?
 

Atsugi

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Noting that "1990-1991 Gulf War veterans have been shown to be approximately twice as likely to develop ALS as veterans who had not served in the Gulf," the DoD research program funds researchers who work toward treatment and cure.

That is, DoD takes applications from civilian labs and doles out money to them, in the hopes of finding a cure or treatments.
 

Nikki J

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I don't know how much is specifically service connected but they definitely fund other ALS research presumably on the theory that whatever helps all PALS helps VALS. I know UMiami got some research money from DoD
 
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