inactive support group?

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CuriousGirl

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Nov 7, 2010
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10/2012
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after 3 years of emg's, nerve conduction studies, mri's, blah blah blah. i haven't been diagnosed with pma definately, but neurologist suggested it may be pma or hiriyama syndrome.

i've been taking a look at the pma support group, but there're no postings since january 2011. what happened to everybody? i'd really like to be a part of the support group, but .......
 

trfogey

Very helpful member
Joined
Jan 31, 2008
Messages
2,017
Reason
PALS
Diagnosis
07/2007
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Not too many pure PMA cases around here these days. Maybe a few posts will wake them from their slumbers.

Welcome to the site.
 

Alyoop

Very helpful member
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Jul 5, 2010
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1,782
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Just join in the main forum, no reason why not. There are heaps of members with out definite diagnoses, just sitting around being attacked by endless needles! Me for one. People don't grump at me because I dont have definite Pls.
Would be a pleasure to have you join in and your health issues will be similar to everyone else any way.

Aly
 

lynster

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Jun 12, 2008
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When I have posted, it's been in the ALS support group for the very reason that you said - no activity here...
 

CuriousGirl

Member
Joined
Nov 7, 2010
Messages
26
Diagnosis
10/2012
Country
US
State
CA
hi, oregon native. you started out PMA? where are you now?
 
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