scottj0987
New member
- Joined
- Jul 24, 2011
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Cleveland
- City
- Ohio
Hey guys,
So this is my story. I am a 25 year old male. Have had my fair share of diseases in life, (IBD diagnosed as a teenager and some rheumatic issues related to that) but up until now nothing that is neuromuscular in its character.
This spring (´11) I felt more tired than I had done ever before and felt unsteadiness when walking. Symptoms just accumulated ever since, cramping/tiredness in my legs, slight atrophy of left arm (all the way from biceps to hand), slight atrophy in left leg, fatigue, pain between my shoulders and fasciculations that started in one thigh and now has spread to all over my body.
Saw a neuro 1 month ago who sent me to an MRI (brain, brainstem, spine --> T6 level) which came back OK. She ruled out MS but said my history suggested ALS. She nevertheless decided that benign fasciculation syndrome was the most probable diagnose at this stage since my status at that time was unremarkable.
I really don´t believe the BFS theory since my condition has steadily gotten worse since then. Also I´ve learn that BFS is a diagnosis of exclusion, so that it´s much to early to make that diagnose at this point.
No heredity for neuromuscular disorders in my family. I got the swine flu vaccine in December 08. Have always been in extremely good shape.
Had an MRI (the rest of the spine) 2 days ago and then received muscle relaxant. This felt like heaven and made me able to do some jogging the day after. Not a good sign either that the muscle pain went away with that medication I suppose.
Now scheduled for EMG. I am totally convinced I have the disease but I guess I have to wait for the EMG result before anything is definite.
Best wishes to all of you.
/Scott
So this is my story. I am a 25 year old male. Have had my fair share of diseases in life, (IBD diagnosed as a teenager and some rheumatic issues related to that) but up until now nothing that is neuromuscular in its character.
This spring (´11) I felt more tired than I had done ever before and felt unsteadiness when walking. Symptoms just accumulated ever since, cramping/tiredness in my legs, slight atrophy of left arm (all the way from biceps to hand), slight atrophy in left leg, fatigue, pain between my shoulders and fasciculations that started in one thigh and now has spread to all over my body.
Saw a neuro 1 month ago who sent me to an MRI (brain, brainstem, spine --> T6 level) which came back OK. She ruled out MS but said my history suggested ALS. She nevertheless decided that benign fasciculation syndrome was the most probable diagnose at this stage since my status at that time was unremarkable.
I really don´t believe the BFS theory since my condition has steadily gotten worse since then. Also I´ve learn that BFS is a diagnosis of exclusion, so that it´s much to early to make that diagnose at this point.
No heredity for neuromuscular disorders in my family. I got the swine flu vaccine in December 08. Have always been in extremely good shape.
Had an MRI (the rest of the spine) 2 days ago and then received muscle relaxant. This felt like heaven and made me able to do some jogging the day after. Not a good sign either that the muscle pain went away with that medication I suppose.
Now scheduled for EMG. I am totally convinced I have the disease but I guess I have to wait for the EMG result before anything is definite.
Best wishes to all of you.
/Scott