lynster
Distinguished member
- Joined
- Jun 12, 2008
- Messages
- 136
- Country
- US
- State
- OR
- City
- Pacific Northwest
Hi,
My husband is at the stage with lots of testing going on - we know that he has MND, but do not yet know which one. He is able to get around, even though he gets tired quickly. This all started with fatigue & daytime sleepiness, followed by a sleep study and being fitted for a CPAP - which caused him to stop breathing because he was so oxygen deprived! A trip to the hospital, transferred to a large hospital and home, he was put on a BIPAP, which has helped his breathing immensely. However, after a first diagnosed of Myasthenia Gravis, it was found that he did not have it. He does not have the antibodies, nor does the medication for MG work, so...
My point here is that I had not intended to post until I had questions, but I find that I cannot read all the posts and see the pictures. I really need this support system, even though I do not yet have much to say.
What can I say? I am in shock, I am distressed and I come here for information and support. How can I get privileges to view all posts?
Thanks for listening.
My husband is at the stage with lots of testing going on - we know that he has MND, but do not yet know which one. He is able to get around, even though he gets tired quickly. This all started with fatigue & daytime sleepiness, followed by a sleep study and being fitted for a CPAP - which caused him to stop breathing because he was so oxygen deprived! A trip to the hospital, transferred to a large hospital and home, he was put on a BIPAP, which has helped his breathing immensely. However, after a first diagnosed of Myasthenia Gravis, it was found that he did not have it. He does not have the antibodies, nor does the medication for MG work, so...
My point here is that I had not intended to post until I had questions, but I find that I cannot read all the posts and see the pictures. I really need this support system, even though I do not yet have much to say.
What can I say? I am in shock, I am distressed and I come here for information and support. How can I get privileges to view all posts?
Thanks for listening.