- Joined
- Nov 12, 2015
- Messages
- 657
- Reason
- CALS
- Diagnosis
- 11/2015
- Country
- US
- State
- CA
- City
- San Diego
Today is our anniversary...16 years ago we were married. Most people just say these words as part of their vows; we CALS live it every day. We have now spent 25% of our married life with this unwanted third party.
I was having a good month this month; I have gotten the contractors on board to start the elevator project; got the non-operational sports car moved out of the garage so the contractors can actually do their work; shopped for, bought, and had the bidet toilet installed; got an AFO for my PALS. In addition to managing what is left of his business and working part time at mine. He is still progressing but slowly; though I am a little concerned about the amount of time he now needs the Bipap after starting on it just 4 months ago.
Then I scrolled through my Facebook feed and noticed a post from some people we were friends with. They had a lovely get together at their house with many of our other friends. We would have been there in the past but now we were not invited. Despite the fact that they have been pretty darn scarce since diagnosis it still made me feel really sad.
On a more positive note, a good friend got good news about her cancer; she went through chemo for 3 months and looks to be clear. And I have planned a trip to Yellowstone for the end of August. I was actually able to get ADA rooms at the lodges within the park! Thought that would be impossible but there were some vacancies. I know my PALS is often fatigued and short on energy, I know he isn't always in the best mood and feels frustrated, but I so wanted him to have this experience. I told him if he really is struggling we can turn around and come home. He is still able to get up and out and now is the time for us to do these things. So I'm hoping we will have this experience together.
V
I was having a good month this month; I have gotten the contractors on board to start the elevator project; got the non-operational sports car moved out of the garage so the contractors can actually do their work; shopped for, bought, and had the bidet toilet installed; got an AFO for my PALS. In addition to managing what is left of his business and working part time at mine. He is still progressing but slowly; though I am a little concerned about the amount of time he now needs the Bipap after starting on it just 4 months ago.
Then I scrolled through my Facebook feed and noticed a post from some people we were friends with. They had a lovely get together at their house with many of our other friends. We would have been there in the past but now we were not invited. Despite the fact that they have been pretty darn scarce since diagnosis it still made me feel really sad.
On a more positive note, a good friend got good news about her cancer; she went through chemo for 3 months and looks to be clear. And I have planned a trip to Yellowstone for the end of August. I was actually able to get ADA rooms at the lodges within the park! Thought that would be impossible but there were some vacancies. I know my PALS is often fatigued and short on energy, I know he isn't always in the best mood and feels frustrated, but I so wanted him to have this experience. I told him if he really is struggling we can turn around and come home. He is still able to get up and out and now is the time for us to do these things. So I'm hoping we will have this experience together.
V