Jeroen22
New member
- Joined
- Jan 1, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- NL
Hi there,
Since 3 months i am a regulair visitor of this forum. I must say it helped me a lot. As I can see I’m one of the many that has some symptoms, went on Google, and found myself trapped in some worrysome thoughts. I tried to make sense of my thoughts and found a lot of answers on the site. But stil I don’t know it for sure, so maybe you guys could give your thoughts about me.
Male, 34 years old.
Around oktober last year I got fasculations in my right bicep. I am a little known with fasculations (mostly calves after some exercise). But now it was in my bicep where I never had this. I lasted for a month, where I got them almost on a daily base. Then I went to my dokter, he said nothing to worry as I was not showing any muscle failure and it was in 1 spot.
Then the month after it went from one place to my whole body (eye, waist, back, throth, arm, chest, innerpalm of my hand and today it is going some place between my butt and my genitals. Weird spot…
After 2 months in I went to my doctor again. He could not explane the twitching on all the spots, and referred me to the neurologist. Saidly the waiting time is 3 months!
About a month I started to get a weird feeling in my left leg. It started with some buzzing (maybe fasculations, but I don’t see them, only feel), then for a week the top of my feet felt warm/cold. Then te buzzing/fasculations went a littlebit up in my leg. I can feel them, but I don’t see them. I only can see fasculations in that leg after I wake up. It is sometimes in the top of mij feet/ancle area, and sometimes juist under my knee.
When I am exercising, last time I had to walk 100 stair steps and my calves where shaking when I came up and was feeling very weak. So I have the feeling I am week, but no signs of failure. Can still do everything on 80% of the weight I used to do before I had this. I also feel lightheaded sometimes, not after exercise, but during the day.
My questions
Thanks!
Jeroen
Since 3 months i am a regulair visitor of this forum. I must say it helped me a lot. As I can see I’m one of the many that has some symptoms, went on Google, and found myself trapped in some worrysome thoughts. I tried to make sense of my thoughts and found a lot of answers on the site. But stil I don’t know it for sure, so maybe you guys could give your thoughts about me.
Male, 34 years old.
Around oktober last year I got fasculations in my right bicep. I am a little known with fasculations (mostly calves after some exercise). But now it was in my bicep where I never had this. I lasted for a month, where I got them almost on a daily base. Then I went to my dokter, he said nothing to worry as I was not showing any muscle failure and it was in 1 spot.
Then the month after it went from one place to my whole body (eye, waist, back, throth, arm, chest, innerpalm of my hand and today it is going some place between my butt and my genitals. Weird spot…
After 2 months in I went to my doctor again. He could not explane the twitching on all the spots, and referred me to the neurologist. Saidly the waiting time is 3 months!
About a month I started to get a weird feeling in my left leg. It started with some buzzing (maybe fasculations, but I don’t see them, only feel), then for a week the top of my feet felt warm/cold. Then te buzzing/fasculations went a littlebit up in my leg. I can feel them, but I don’t see them. I only can see fasculations in that leg after I wake up. It is sometimes in the top of mij feet/ancle area, and sometimes juist under my knee.
When I am exercising, last time I had to walk 100 stair steps and my calves where shaking when I came up and was feeling very weak. So I have the feeling I am week, but no signs of failure. Can still do everything on 80% of the weight I used to do before I had this. I also feel lightheaded sometimes, not after exercise, but during the day.
My questions
- What does this sound like, I hope away from ALS
- What do you think of the fasculations, some very weird spots (throth, area between butt and genitals)
Thanks!
Jeroen