In limbo

[Nicky151179]

Hi everyone my symptoms started just over a year ago now and I've been to two neurologists but they are still baffled as to what I have.my symptoms began as feeling really really fatigued which was unusual and nausea,I went to doctor and he said it was ok I continued to feel worse then I noticed my face was beginning to droop both sides which progressively got worse along with atrophy in temples,eyelid droop along with a lot of twitching when muscles are in use.i get twitching all over and people notice my facial twitching a lot,I have also lost muscle tone in arms and legs constantly pins and needles in hands and feet.they have tested me for ms,had lyme test,thyroid,lumbar punch,MRI of head and emg(which went for a short 10 minutes,also ck levels checked and checked for mg also all tests normal so they are baffled to figure out what this is and are watching progression and will re do tests later.have any of you had normal results to begin with and been diagnosed with als later?and do my symptoms sound like als? Your replies would be great as I am a mother with four children and I'm 33 I'm getting sicker all the time and the muscle loss is scary my face is a lot different then 12 months ago I also suffer from muscle jerks especially at rest and my tremors are bad