Weltschmerz
Active member
- Joined
- Apr 14, 2019
- Messages
- 57
- Reason
- CALS
- Diagnosis
- 01/2019
- Country
- UK
- State
- SC
- City
- Edinburgh
Hi all,
With thanks to all of those who have helped throughout the last while, an update to say that my wife's condition has continued to deteriorate all year. We are now approaching an end state, partly because oxygen saturation is beginning to drop substantially on each turn for hygiene. We've experienced heart "episodes" and a general lack of stability. As I had feared, my wife's eyes are now not consistently functionally. To be honest, that's been the case for some time. But now she's not using the eye gaze for any real purpose and seems to be anxious a lot more of the time. The end of communication was to be the end of a line and while we are not yet all the way there, that time is approaching. With covid restrictions in place, it's been almost a year since others besides me were allowed in. (The difficulty of being an expat/immigrant at this time in world history.)
I don't have much to offer but would love to invite any thoughts or reflections on how to make the most of this last time. I have read novels, gone through old yearbooks, and highlighted favourite photos. We both watched videos and listened to playlists from friends and family abroad. It's an ersatz living memorial. But if there are other suggestions I would gladly take them. Thanks again, all.
- W
With thanks to all of those who have helped throughout the last while, an update to say that my wife's condition has continued to deteriorate all year. We are now approaching an end state, partly because oxygen saturation is beginning to drop substantially on each turn for hygiene. We've experienced heart "episodes" and a general lack of stability. As I had feared, my wife's eyes are now not consistently functionally. To be honest, that's been the case for some time. But now she's not using the eye gaze for any real purpose and seems to be anxious a lot more of the time. The end of communication was to be the end of a line and while we are not yet all the way there, that time is approaching. With covid restrictions in place, it's been almost a year since others besides me were allowed in. (The difficulty of being an expat/immigrant at this time in world history.)
I don't have much to offer but would love to invite any thoughts or reflections on how to make the most of this last time. I have read novels, gone through old yearbooks, and highlighted favourite photos. We both watched videos and listened to playlists from friends and family abroad. It's an ersatz living memorial. But if there are other suggestions I would gladly take them. Thanks again, all.
- W