Karin Joy
Member
- Joined
- Jan 21, 2008
- Messages
- 14
- Reason
- Other
- Country
- US
- State
- California
- City
- Los Angeles
I am sorry I haven't been on in awhile - and I just was reading the "arugments" regarding my post.
So, now I am totally freaked out and feel sick that I caused the arugment.
I did go back to the neurologist at the ALS clinic and she did the usual strength tests, and told me that I am the same, she did not want to do an EMG due to the fact that I just had one in late January.
So is everyone telling me that I do have ALS - I am so confused and now scared to death. I still am having the horrible twitching in the left leg and I now have the cramp like feeling there as well. After reading the posts, I started doing the self-testing and hopped on the left leg for 100 counts - and now I made the twitching horrible - has anyone here experienced this after exercising - the twitching is immediate? I also have the pain in my hands the thenar muscle - and my left hand has a big dent in it - whereas the right one does not. I showed it to Dr. Abi, she is the neurologist I see at Cedars Sinai who heads the ALS clinic.
I have heard that a neurologist would be able to pick up something related to ALS on just the clinical exam alone - she was not able to fatigue any of my muscles and I had to do what looked like the chicken dance for 10 minutes.
Maybe I have gotten worse in the last two weeks is that possible?
MTpockets - I asked her about the elevated CK - she said there could be a 1,000 reasons for the elevation - it is not always related to ALS. My last test was at 213 (normal being 29-168). That never seem to be a concern for her.
So should I go to a third neurologist and get another opinion? Or is this just a waiting game?
Karin
So, now I am totally freaked out and feel sick that I caused the arugment.
I did go back to the neurologist at the ALS clinic and she did the usual strength tests, and told me that I am the same, she did not want to do an EMG due to the fact that I just had one in late January.
So is everyone telling me that I do have ALS - I am so confused and now scared to death. I still am having the horrible twitching in the left leg and I now have the cramp like feeling there as well. After reading the posts, I started doing the self-testing and hopped on the left leg for 100 counts - and now I made the twitching horrible - has anyone here experienced this after exercising - the twitching is immediate? I also have the pain in my hands the thenar muscle - and my left hand has a big dent in it - whereas the right one does not. I showed it to Dr. Abi, she is the neurologist I see at Cedars Sinai who heads the ALS clinic.
I have heard that a neurologist would be able to pick up something related to ALS on just the clinical exam alone - she was not able to fatigue any of my muscles and I had to do what looked like the chicken dance for 10 minutes.
Maybe I have gotten worse in the last two weeks is that possible?
MTpockets - I asked her about the elevated CK - she said there could be a 1,000 reasons for the elevation - it is not always related to ALS. My last test was at 213 (normal being 29-168). That never seem to be a concern for her.
So should I go to a third neurologist and get another opinion? Or is this just a waiting game?
Karin