phaetonv8
Member
- Joined
- Mar 9, 2017
- Messages
- 14
- Reason
- Learn about ALS
- Country
- UK
- State
- BEDFORDSHIRE
- City
- BEDFORD
Hi everyone
l would like to say firstly im really sorry that l am having to post my situation here knowing the amount of pain and stress that most are going through, l have read the stickies time and time again but now just cant help myself
A few weeks ago l was experiencing pain in joints, ankles and arms and feeling muscle twiches, yes l very foolishly went on GOOGLE and the rest is history as they say. l went to my local GP who felt it was not serious and ordered blood tests for thyroid (came back negative) he said to stop going on net and calm down.
Over the next week or so l very studpidly again went on the net and learnt about Bulbar onset, within a day or so l suddenly started to experience swallowing issues, speech going all over the place, keep looking at my tongue for twiches and just very aware of all mouth movements.
l then was feeling the same pain in my joints, so l went to local clinic, they checked me over and Doctor again said stop worrying and stay off the net. At this point now im really feeling low due to the tongue, mouth and speech becoming an issue ( well to me anyway), l then decided to go private and seek a Neurologist. As soon as l saw him he read me like a very bad book, checked me over during a clinical exam and said " YOU DO NOT HAVE THIS ILLNESS" l mentioned about a EMG test and he laughed at me to say, if l felt you warranted one l would have.
Im sorry for this sad post to which lm sure l will be told where to go, family life has been very tough due to my antics, and even though l have had 4 GPs and a Neurologist tell me there is nothing wrong, why do l feel there is still a issue with my speech, tongue, croaky voice hear and there?
could it be that l need help with anxiety??
Again let me apologise in advance for this self worrying behaviour.
Mark:|
l would like to say firstly im really sorry that l am having to post my situation here knowing the amount of pain and stress that most are going through, l have read the stickies time and time again but now just cant help myself
A few weeks ago l was experiencing pain in joints, ankles and arms and feeling muscle twiches, yes l very foolishly went on GOOGLE and the rest is history as they say. l went to my local GP who felt it was not serious and ordered blood tests for thyroid (came back negative) he said to stop going on net and calm down.
Over the next week or so l very studpidly again went on the net and learnt about Bulbar onset, within a day or so l suddenly started to experience swallowing issues, speech going all over the place, keep looking at my tongue for twiches and just very aware of all mouth movements.
l then was feeling the same pain in my joints, so l went to local clinic, they checked me over and Doctor again said stop worrying and stay off the net. At this point now im really feeling low due to the tongue, mouth and speech becoming an issue ( well to me anyway), l then decided to go private and seek a Neurologist. As soon as l saw him he read me like a very bad book, checked me over during a clinical exam and said " YOU DO NOT HAVE THIS ILLNESS" l mentioned about a EMG test and he laughed at me to say, if l felt you warranted one l would have.
Im sorry for this sad post to which lm sure l will be told where to go, family life has been very tough due to my antics, and even though l have had 4 GPs and a Neurologist tell me there is nothing wrong, why do l feel there is still a issue with my speech, tongue, croaky voice hear and there?
could it be that l need help with anxiety??
Again let me apologise in advance for this self worrying behaviour.
Mark:|