Icanmanz
Senior member
- Joined
- Jul 14, 2007
- Messages
- 947
- Reason
- PALS
- Country
- Uni
- State
- Texas
- City
- Tomball
lhagsjr said:so many things for 10 months. Im spent. I have fought:
1.) The symptoms and watching my 28 years young body deterioate in front of my eyes. The last 2 weeks have been HORRIBLE because i have lost so much muscle just in the last 2 weeks its amazing.
2.) PAIN: My shoulders are KLLING ME 24/7 from being unstable. They pop in and out of the join3 and crackle ALL DAY long with any movement.
3.) The struggle with my family. They dont think Im crazy but they dont believe me that its as serious as it is...
4.) Financial worries. How the hell are we going to afford the mortgage when I cant work which is going to be very soon. I struggle VERY MUCH to get out of bed now.
I truely want to die.
lhaq----I have been reading your posts, and its responses. I wish there was a way we could be of some help. Als is such a horrible disease. I am totally out of words. All I can do is try, and be of a little help! I just lost my son, 38 yrs, 2 months ago, and believe me I saw the changes right before my eyes. Many a night I'd just lay in bed, not able to sleep, and ask myself, "Why do these things happen?" I cried soooo many tears, so many, that by the time my son's departure took place, I couldn't cry anymore. I felt numb. Even now, today, i get mad at myself, because I couldn't cry as much as I did during the time that my son was ill. My son lasted 15 months after diagnosed, those 15 mos. were pure torment for me. Als is so bad, it hurts so many people, and my son, poor baby, he was such an angel, he never complained. He just wanted for us to act normal, which I tried, but I was dying inside. His illness, and his departure changed me. I love my son so much, and miss him trribly. I talk to him every night when I am praying. I am just waiting for that moment when we meet again.
Now, let me ask you, didn't you say that your family don't believe that it is serious, or am I wrong? I am sure your family is sticking by you! Have you tried talking to your clergy? Or maybe, get your immediate family together, and share your thoughts, or whatever. Are you angry? If so, who are you angry at? I don't know why I am asking you such questions, I am sure it is a different ballgame, when you are the als sufferer. May God bless you, and give you the strength to endure this terrible illness. We will be praying for you. Keep us posted.
xoxoxo,
Irma