- Sep 26, 2012
- DX UMND/PLS
Hi. I'm new here. I just got diagnosed with PLS a couple weeks ago officially after 2 years of looking for answers. I'm 35 year old woman and doctors thought I was crazy and just needed therapy. It was seriously hard since I became severely disabled within a few months time. I went from being a normal 33 year old in graduate school to having such bizarre symptoms doctors could not explain. My legs started getting so stiff and feeling weak and I felt like I was a robot that needed some oil. Then my legs started shaking all weird when standing and walking and my balance became so bad I needed a walker. Then my speech started stuttering and slurring bad. I was in grad school to try and become a therapist. Communication is everything. Then my speech got so bad I could not speak anything intelligible. Speech therapist could not help me. I used a dry erase board to communicate for a very long time. Then I bought a iPad and found a speech app which I now use to communicate. Was told could not continue in my grad program. It's been very isolating the past two years. I also have pseudobulbar affect very bad often a few episodes a day. It feels like conscious seizures and border on painful. This also keeps me more isolated as I'm embarrassed when this happens in public. I want to go to a in person support group but have only found those for people with ALS. Don't know if this would be considered intruding since I'm diagnosed with PLS?